So my pain level has hit 9, and I stayed there for the past two hours. and my sweet child is pissed and complaining that I am "acting like a whining little bitch"...
it has to be paid for them to cut the water back on
please, if anyone can help me get my water back
please
I'm a disabled non-binary person (ADHD and bipolar), my partners are both disabled as well (anxiety and depression, as well as my wife having fibromyalgia)
I'm working as much as I can, but my job doesn't pay a living wage
So I need to make more space and lose more of my own living space to move the AC so that the temp differential doesn't kill the TV that I can not afford to replace.
I needed to get spoons to get up and do this, as I am bed-bound.
My 11 yro is angry that I am not doing what he wants, and would not let me do what I needed to get spoons, he stole my spons.
And now he is livid at me, because I have less spoons than I started the day with, I can't do now, hell I can't even eat now.
And he is screaming at me blaming me for not doing what needed to be done so he could get what he wanted in the first place.
I am so exhausted and overheating with my meds; if I overheat, bad things happen.
And he just doesn't get it.
As far as he is concerned, it's all my fault that his day and plans, which he never shared, to begin with, are ruined.
Positive news for the day: The doctor filled out forms for me to get an accessible parking permit! Fingers crossed that it gets approved. This would be so majorly helpful for me, particularly on high pain days! I don't drive, but sometimes, I get rides places and all the walking can make my pain worse. #ChronicPain#Fibromyalgia
people with #fibromyalgia - do you ever get burning sensations everywhere, rather than the deep muscle pain? I feel like I have a sunburn all over. Gods, I complain a lot. I'd ignore me were I you.
Racism has forced me to resort to eating a Taco Bell bean burrito for lunch. I could really use some prayers for my colon and $1500 to buy a pistol-caliber carbine and a Steam Deck.
"Here's a brief update on my recent shift from traditional clinical trials to remote clinical trials in which individuals can participate from anywhere in the United States. I already have an ongoing remote trial for Gulf War Illness and hope to expand to fibromyalgia, Long-COVID, and ME/CFS. This remote approach is not common, but is being embraced by an increasing number of labs. I am excited that this change will give people the opportunity to participate who never could before." - Jarred Younger