December 12th is always an emotional day for me. It's my late wife Barbara's birthday, and the #grief wells up and spills out.
Today was absolutely just such a day. And to top it off, my roommate went off on a rant about how my depth of feeling on that topic is wrong and unhealthy. Not her words. I cleaned it up.
I had a huge meltdown as a result. Now I'm exhausted, and in pain. I'm turning in for tonight. I hope.
The Missus and I are going to Puerto Rico. She has #fibromyalgia (severe, chronic pain and fatigue) and is often fairly limited, physically. I wonder if folks familiar with PR across the fediverse can recommend activities for us (other than the obvious beach time) that will give her fun experiences without over-stressing her body. We will have a vehicle.
I know this is a niche question, so I appreciate your boosts to reach folks who can help!
Howdy kind Mastonauts! 😁 Welcome to this new account.
I made (another) account to share things that are not health or entertainment related. I have dedicated accounts for those things (links in bio).
I will boost those toots when I feel them "good enough" to share with you.
Sharing in the interest of rejecting the stigma around these things... I've added Duloxetine (Cymbalta) to the list of meds I take every day. 💊
I am hopeful it will help with pain, but even more hopeful that it will boost my mental well-being, raise the bar of what I can accomplish in a day, and keep my spirits up while on this wild health journey.
Another storm is coming in and I hurt everywhere. I feel like such a cliché- old lady who can predict weather from body pain. How fucking annoying. #fibromyalgia#fibroflare
people with #fibromyalgia - do you ever get burning sensations everywhere, rather than the deep muscle pain? I feel like I have a sunburn all over. Gods, I complain a lot. I'd ignore me were I you.
I know my #AppleWatch can be worn during swimming but for some reason I am terrified of wearing it in the shower. I feel like an old who can't accept that a tiny computer on my wrist can go in the shower with me. LOLOL. Does anyone wear theirs in the shower?
I ask because I blacked out in the shower this morning & started to fall but I snapped out of it & caught myself. I think I need the fall detection on in the shower.
It's been a rough week for my #fibromyalgia. I'm grateful I've still been able to get out of bed every day. but my spoons have been running out early every day. Managing my injured finger* is not helping, I'm sure, though I'm getting used to the new plastic brace I got on Monday.
*I got a 'mallet finger,' ICYMI. at least it's not on my dominant hand.
I'm lying in bed, wide awake, again. Woke up about 1am. It's coming up on 2:45am. Just took a couple of Tylenol, and applied some Diclofenac gel. Tonight's pain is mostly in my neck and shoulders. A bit in the lower back too.
It's nothing new or unusual, but I'm really tired (pun intended) of waking up in pain in the middle of the night.
Day three on Duloxetine. Lots of shakes and tremors, some nausea, very low appetite. No difference in mood yet, but mild increase in anxiety. POTS symptoms were a bit worse on day one but it passed quickly. Almost no EDS pain today, which is a very welcome change. Absolutely exhausted. If I'm still this tired after a week I'll try taking it at night instead of the morning. It's no picnic but I'm staying the course.
I have been out of sorts all day, mostly because I have two sprained thumbs. And every time I reach for anything, the sprained tendons scream at me again. Most tedious. (How did I sprain both thumbs? I reached for things. Arrrgh!) Specialist physio tomorrow might have to modify my #mastectomy recovery exercises, I think! #fibromyalgia#MECFS
Currently waiting on my cardiologist to review the CT results and suggest next steps. I'll probably be put on a statin, at a minimum. I do have some hardening of the arteries, as well as more significant hardening of the aortic valve.
All of which isn't great, but not immediately life-threatening either, so far as I can tell from the Internet. I'll update when the cardiologist gives me his take.
Positive news for the day: The doctor filled out forms for me to get an accessible parking permit! Fingers crossed that it gets approved. This would be so majorly helpful for me, particularly on high pain days! I don't drive, but sometimes, I get rides places and all the walking can make my pain worse. #ChronicPain#Fibromyalgia
When you get to the end of the day, do you ever find that your muscles just kinda ache a little? Like my back muscles ache and feel really strained by the end of the day. And I maybe even feel a little stiff.
Someone is suggesting i might have #fibromyalgia because of my intermitent joint pain. And I'm curious to see if the muscle pain might be linked? I always thought the muscle aches were dyspraxia related? #disability
On top of everything else, I've been dealing with a sinus infection for a bit over three weeks. I saw a doctor this past Tuesday, and got an Rx for Augmentin.
Today, I was feeling better. So what did I do? Yes, I overdid. I decided to assemble my new office chair, among other things.
Now I have a #fibro flare in full bloom. My back especially is on fire, and I'm walking like a 90 year old grandma. This is probably good night. 🤷♀️😢
I can't bind because of chronic pain, and trans tape isn't holding my tits because it's heavy, I can't do surgery either because it takes more than morphine for me to not suffer, what should I do? I'm lost.