(pay wall)
"Parents of children with #longCovid claim they have been accused of faking or exaggerating their child’s illness, leading to social services’ involvement and... court cases and the threat of the child’s removal from the home."
New research from UK team:
Examining well-being and cognitive function in people with #longCovid and ME/CFS, and age-matched healthy controls: A Case-Case-Control Study
"*PEM is post-exertional malaise, also known as post-exertional symptom exacerbation. It is a symptom of ME/CFS and is also found in many people with #longCovid"
"PEM is dangerous. PEM can last hours, days, weeks, months, or a lifetime. Its duration and severity are wildly out of proportion to whatever prompted it. It can result in permanent harm. PEM can take a person who is able to work or look after their children, and make them bedbound. PEM destroys lives."
I think diagnoses like #LC & #MECFS are important for those ill after an infection to help adapt to the impairments, not get worse from pushing/having to push, etc
Developing effective strategies to optimize physical activity and cardiorespiratory fitness in the long Covid population- The need for caution and objective assessment
We have made images of the charts from the analysis of PubMed publications data for #MECFS & #LongCovid available in our Google Drive, for use by anyone in advocacy 📊
"We have found a potential mechanism underlying #LongCOVID which could represent a biomarker – that is, a tell-tale signature of the condition. We hope that this could help to pave the way to develop therapies and give some patients a firm diagnosis”
A Randomized Double Blind Placebo Control Trial to Determine the Effects of Oxaloacetate on Improving Fatigue in Long COVID
Compensation: "Eligible participants will be compensated $50 for each in-person visit. At the end of the study, participants will be provided with a 45-day trial of oxaloacetate if they are interested"
Today the first article I wrote in bed was published. It responds to the recent recommendation of GET for PEM by prof Fedorowski et al. In our piece of correspondence, we explain why GET should not be recommended for pw PEM.
Update I saw today from somebody in the #MECFS community. Please highlight widely.
"I inquired about the trial a couple of weeks ago, one of the coordinators mentioned that they only had 11 people participate so far, their goal is to recruit roughly 100. The location is very easy to get to via public transit, the trial location is set on the Upper East Side (a few blocks away from the 96th St. subway station). If you are in the New York Metro Area, please consider participating."
#LongCOVID & ME/CFS have overlapping symptoms, yet many studies overlook the proportion of individuals with long #COVID who meet ME/ #CFS criteria. Read more about current estimates of the proportion of individuals with long #COVID19 who meet #MECFS criteria: