ohmrun, to random
@ohmrun@hachyderm.io avatar

Finally got confirmation that after an Nth round of tests by a second doctor that it is (likely)

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar
tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

New 12-minute video:

"I believe microglia are the primary culprit behind #fibromyalgia, #MECFS, #GulfWarIllness, #LongCOVID, and other #chronicpain & fatigue disorders.

Here is a quick video on what I am trying to do to fix the problem. - Jarred Younger"
https://www.youtube.com/watch?v=XggO__DlALw

@mecfs

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #CFS #PwME @longcovid
#PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC
@chronicpain @fibromyalgia
#Fibro #FMS #FM

tomkindlon, to fibromyalgia
@tomkindlon@disabled.social avatar

A cross-sectional study demonstrated significant impairments in attention, memory, and higher cognitive functions among a cohort of patients with #fibromyalgia and #RheumatoidArthritis (RA)

https://www.hcplive.com/view/patients-with-fibromyalgia-scored-worse-in-memory-attention-cognitive-function

#Fibro #FMS #FM @fibromyalgia

tomkindlon, to cfs
@tomkindlon@disabled.social avatar

New from Norway:

Exploring levels of TSH and FT4 in patients with #ChronicFatigueSyndrome (#CFS), #fibromyalgia (#FM) and healthy controls did not reveal any associations between fatigue score and level of #thyroid hormones

Free fulltext:
https://www.tandfonline.com/doi/full/10.1080/08039488.2024.2332442

@mecfs

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM

tomkindlon,
@tomkindlon@disabled.social avatar

2/

Fukuda criteria were used for CFS diagnosis. The authors conclude that, although they found no between group differences, "we suggest future studies to examine the field further by exploring the influence of thyroid receptors and responses of the thyroid hormone cascade".

@mecfs @fibromyalgia #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #Thyroid #fibromyalgia #fibro #fms

tomkindlon, to Vape
@tomkindlon@disabled.social avatar

Jarred Younger:
A large remote clinical trial grant on low-dose naltrexone ( ) & cannabidiol ( ) for was rejected. If you want to hear a bit about how I feel about rejected grants & how I handle them...

https://www.youtube.com/watch?v=9fkfvFIDyWI

@mecfs
@fibromyalgia

janetlogan, to LGBT
@janetlogan@mas.to avatar

Yesterday, I saw the first of several doctors I will need to line up since my (unplanned) relocation. I liked her. She works in an #LGBT friendly clinic and will handle my #Feminizing #HRT on an ongoing basis.

It was a surprisingly long appointment IME. All told the appointment was almost two hours, plus an hour round-trip travel time.

By the time I got home, I was exhausted and in a mild #fibro flare.

#spoonie #trans #transgender #fibromyalgia

@spoonies

scrappedbadnik, to transmasc
@scrappedbadnik@cooltrans.men avatar

I can't bind because of chronic pain, and trans tape isn't holding my tits because it's heavy, I can't do surgery either because it takes more than morphine for me to not suffer, what should I do? I'm lost.

janetlogan,
@janetlogan@mas.to avatar

@scrappedbadnik

I'm sure you've heard it before, but you asked. Have you tried CBD / medical marijuana? I recently started THC free CBD for my and was quite surprised by the effects.

I can't take opioids (too strong reaction) or NSAIDs (CKD) so I've been sruggling to control . I'm also . I'm a trans woman, so binding isn't a need for me. I hope you get some answers.

@spoonies @actuallyautistic

tomkindlon, to fibromyalgia
@tomkindlon@disabled.social avatar

Latest Jarred Younger video:

"Detecting neuroinflammation with brain imaging" (Neuroinflammation, Pain, and Fatigue Lab at UAB)

https://www.youtube.com/watch?v=GS8rgE9HKSU

#Fibromyalgia #Fibro #FMS #FM @fibromyalgia

janetlogan, to actuallyautistic
@janetlogan@mas.to avatar

#BrainFog is really acting up today. #Fibro pain is much higher than normal too. Thanks to the brain fog, I totally spaced on a group #therapy session earlier.

#ChronicPain #fibromyalgia #spoonie #ActuallyAutistic

@spoonies @actuallyautistic

tomkindlon, to fibromyalgia
@tomkindlon@disabled.social avatar

Press release:

"A blood test will diagnose #fibromyalgia more reliably: A pioneering technique that a URV researcher has helped to develop enables this chronic disease to be identified more quickly and precisely"

https://www.eurekalert.org/news-releases/1036432

#Fibro #FMS #FM @fibromyalgia

1/

kitwinter, to mecfs
@kitwinter@dice.camp avatar

Arthritis, fibromyalgia, and pain flares don't mix. If you can help out, please do! TIA

https://www.gofundme.com/f/help-fund-a-power-chair

tomkindlon, to fibromyalgia
@tomkindlon@disabled.social avatar

Frequency of idiopathic intracranial hypertension with ultrasound in patients with fibromyalgia: Relation with function, central sensitization, and neuropathic pain

https://onlinelibrary.wiley.com/doi/abs/10.1111/1756-185X.15066

#IdiopathicIntracranialHypertension #IIH #Fibromyalgia #Fibro #FMS #FM @fibromyalgia

janetlogan, to spoonies
@janetlogan@mas.to avatar

On top of everything else, I've been dealing with a sinus infection for a bit over three weeks. I saw a doctor this past Tuesday, and got an Rx for Augmentin.

Today, I was feeling better. So what did I do? Yes, I overdid. I decided to assemble my new office chair, among other things.

Now I have a #fibro flare in full bloom. My back especially is on fire, and I'm walking like a 90 year old grandma. This is probably good night. 🤷‍♀️😢

#spoonie #fibromyalgia #pain

@spoonies

janetlogan,
@janetlogan@mas.to avatar

Good night? Ha. In my dreams. Slept maybe 45 minutes. Awake again since about an hour ago. sucks.

@spoonies

janetlogan, to spoonies
@janetlogan@mas.to avatar

I had a burrito bowl for breakfast, wit a liter bottle of water. For lunch, I treated myself to a Dunkin Donuts sandwich and an iced macchiato.

I'm well hydrated, and I think the caffeine in that coffee has helped with the pain.

@spoonies

janetlogan, to actuallyautistic
@janetlogan@mas.to avatar

ATL is a huge and busy airport. I've seen maybe 3 masks. Sigh.

It's going to be a long day. Upper back pain has begun. So is flaring.

I'm past security, so I can relax. I'm safe. So why is my brain still in hyper vigilant mode?

@spoonies @actuallyautistic

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar
janetlogan, to spoonies
@janetlogan@mas.to avatar

Hello my old friend. It's been a while. Kept nodding off around 9pm, so decided to turn in early. All I've done since is toss and turn.

The pain from the assault isn't helping either.

@spoonies

janetlogan,
@janetlogan@mas.to avatar

According to the smartwatch, I fell asleep about 5 minutes after posting that. And though I woke a few times to go to the bathroom, I slept until 7:15 this morning.

I can't complain about sleeping almost 8 hours.

@spoonies

Gorfram, to random
@Gorfram@beige.party avatar

for today's Genius Move, I decided to check on my pan of chicken halfway through roasting, even though it didn't really need it.

It did really need it, because I'd forgotten to turn the oven on.

#GeniusMove
#BrainFog
#Fibro
#FibroSucks

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

Mitochondrial Dysfunction and Coenzyme Q10 Supplementation in Post-Viral Fatigue Syndrome: An Overview

Free fulltext:
https://www.mdpi.com/1422-0067/25/1/574

Note: The lead author "is medical adviser to Pharma Nord (UK) Ltd"

@mecfs
@longcovid

@fibromyalgia

1/

janetlogan, to Autism
@janetlogan@mas.to avatar

I've watched the last two Indiana Jones movies today. Crystal Skull and Dial of Destiny. I enjoyed them both, even under the weather. Yes I am feeling poorly.

One of two possibilities. Either I have a cold, which coincidentally began about 12 hours after the RSV vaccine, or I am having side effects from said vaccine.

Honestly, even if it is from the vaccine, I'm still glad I got it. Vaccines are important, especially at my age. And, no, they don't cause .

1/2

janetlogan,
@janetlogan@mas.to avatar

I've had intermittent low grade fever, fatigue, stuffy head, and occasional cough. The fatigue could be , but the rest is definitely not.

I'm treating with generic Alka Seltzer Cold and Flu. That and bed rest. No big plans for are being ruined. Not to worry.

2/2

@spoonies @actuallyautistic

janetlogan, to actuallyautistic
@janetlogan@mas.to avatar

Between going out in the cold after only 2 hours of sleep, and the stress of my worrying about the test, my is flaring big time. I'm going to go relax in bed, and try to recover. 💤

I handled the peopling fairly well. The Lyft driver over there this morning was cute, with great mom energy. Of course, she was the age of my own kids. 🤷‍♀️ But she helped me to relax a bit. 💜

@spoonies @actuallyautistic

janetlogan, to spoonies
@janetlogan@mas.to avatar

It’s been another busy day today. Went to clinic for labs. That took way longer than it should have for middle of the week between holidays. Way too peoply too. My self could have done without that.

The phlebotomist was skilled and didn’t cause overmuch pain. That, after commenting on how narrow my veins are. My could have done without that comment.

Came home in pain with back spasms coming and going. Sucks getting old.

@spoonies

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