tomkindlon, to fibromyalgia
@tomkindlon@disabled.social avatar

En français:

Alain Moreau:

La signature biologique laissée dans l’organisme par la fibromyalgie (le 12 mai)

https://www.youtube.com/watch?v=ZPfE8vMZb8Y

#fibromyalgie #Fibromyalgia #Fibrositis #Fibro #FMS #FM @fibromyalgia

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

New from Spain:

Increased gut permeability & bacterial translocation are associated with #fibromyalgia & #MyalgicEncephalomyelitis /#ChronicFatigueSyndrome : implications for disease-related biomarker discovery

Only abstract available currently
https://www.frontiersin.org/articles/10.3389/fimmu.2023.1253121/abstract

"Biomarkers of intestinal barrier function and inflammation were associated with autonomic dysfunction assessed by COMPASS-31 scores in #FM & ME/CFS respectively"

@mecfs
#MEcfs #CFS #PwME #MyalgicE #Fibro #FMS @fibromyalgia

Tinu, to random
@Tinu@mastodon.social avatar

Does anyone else with excess lymph get that taste at the back of their throat during lymphatic drainage?

I have #fibro so I have to be medicated first but shiatsu massagers helps with inflammation.

A lot of people cannot tolerate it at all so I don’t recommend doing it unless you must. If so, I have a shiatsu massager.

I’d follow with alternating in-person massages when I could afford it, back when I could go outside.

Hate that taste though.

tomkindlon, to fibromyalgia
@tomkindlon@disabled.social avatar

Ruling from Spain:

"Judge admits disability due to fibromyalgia, which Social Security rejected"

https://thegoaspotlight.com/judge-admits-disability-due-to-fibromyalgia-which-social-security-rejected/

#Fibromyalgia #Fibrositis #Fibro #FMS #FM @fibromyalgia

IrishMECFSAssociation, to mecfs

Extract:
"She continued to explain how she manages her life, explaining: "So now, I only surround myself with people who understand that if I need to cancel something (& that can happen often) it’s not a choice I want to make and that they go ahead and book something and if they see me rocking up, it’s a bonus!

https://www.thesun.ie/tv/11161664/martine-mccutcheon-hospitalised-illness-dizzy/

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE @mecfs

1/

IrishMECFSAssociation,

2/

Martine McCutcheon: “I also ask my friends to google CFS / #fibro symptoms. If they love you, it’s the least they can do! Understanding helps with support. So thank you to our friends who came with a few hours notice!

@mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE

fractured_void, to Autism

Happy Disability Awareness Month!

Ann Magill, a disabled woman, created the flag so that each color symbolizes a part of the community.

❤️ Physical
💛 Neurodiversity
🤍 Non-apparent & undiagnosed
💙 Mental Health
💚 Sensory (e.g. blind, deaf)
🖤 Mourning for those lost

#autism #disabled #disabilitypridemonth #disabledpride #fibro #spoonie

Hare, to random

Yesterday management brought up our debt which is almost $2300 at this point, and they wanted payment.

Night before they mentioned it as well… 😰

Hare,

There’s more about my family and our situation on our GFM and our Kofi, and I’m open to respectful questions!

Some people don’t realize (or care) how harmful making assumptions is.

DID on it’s own makes our life very interesting at times, not to mention us both being autistic, chronically ill, non-binary, etc.

It’s not that complicated for those who actually care to listen. 🌸

tomkindlon, to fibromyalgia
@tomkindlon@disabled.social avatar

New from Younger group (in USA):

Evidence of neuroinflammation in fibromyalgia syndrome: a [18F]DPA-714 positron emission tomography study

https://journals.lww.com/pain/Abstract/9900/Evidence_of_neuroinflammation_in_fibromyalgia.335.aspx

"We found increased binding of the translocator protein radioligand [18F]DPA-714 in several brain regions in fibromyalgia patients compared with healthy controls."

#Fibromyalgia #Fibrositis #Fibro #FMS #FM @fibromyalgia

IrishMECFSAssociation, to cfs
Hare, to animals

The owner just came to our room and wants $500 by tonight??

Idk how the fuck were supposed to manage that, but we have to do our best to keep him off our ass or he’ll give us another eviction notice. 😭

Hare,

Thank you so much, everyone! 💗

We're now $355 from making rent today & avoiding trouble with the owners, can we raise this in the next 2 hours 30 minutes while our safe person is still in the office?? 🥺

If so, then I can hopefully raise enough for groceries because we're literally out of everything, and are painfully hungry...

Please boost to help these queers & kitties stay off the streets! 🙏🏻

#Boost #MutualAid #Hungry #Scared #Shelter #CPTSD #LongCovid #Fibro #Seizures

Tinu, to random
@Tinu@mastodon.social avatar

There are days when I feel almost normal and can nearly gaslight myself into thinking “if I rally, I can do this”

Sometimes I remember disability can be dynamic.

Then there are days like #MayTheFourthBeWithYou when I do entirely too much and regret it.

Deeply. The following days. I will be a wreck all weekend.

Tinu,
@Tinu@mastodon.social avatar

3- If you don’t know someone with fatigue, you’ll understand that is not just being tired.

I have cancer and only in stage 4 does it feel worse than #fibro, never mind #myalgicencephalomyelitis.

Odds are you may feel that way it need to care for a spouse, child or parent who is fatigued. It will be hard.

Develop the necessary empathy.

So much of capitalism is tied to #ableism. And ableism can’t be separated from the context of racism.

whangdoodler, to gay Finnish

Hi I’m Paju from twitter! I’m , , , and with and . Family consists of spouse, kid, rescue dog and various insects & plants.
I toot mainly in finnish but also in english. I make , and sometimes magic while following where hyperfocus and special interests take me. Said special interests consist broadly of art and craft techniques, fantasy, history and .
If you’re a terf, fascist, misogynist or racist i am not your friend.

janetlogan, to transgender
@janetlogan@mas.to avatar

I am a well educated woman, a demisexual lesbian, and an eclectic . I am loving, and giving. I am a type, who often fails miserably at self care.

I am a widow. The day that my wife died, the doctor came to me asking for my permission to stop all life-saving measures. I said “Call it” to the doctor, thereby finalizing her death.

I am complex, complicated, and worth the effort.

janetlogan,
@janetlogan@mas.to avatar

I am a #spoonie with diagnoses of fibromyalgia, myofascial pain syndrome, moderate cervical spine stenosis, complex PTSD, epilepsy, and stage 2 chronic kidney disease. I have at least two migraines a month on average.

I've recently been diagnosed with #AFib .

I am #ActuallyAutistic . I know autism isn't a disease. Don't @ me, please. :autism:

#fibromyalgia #fibro #CervicalSpineStenosis #CPTSD #seizures #CKD #Migraine #AtrialFlutter #AtrialFibrilation

  • All
  • Subscribed
  • Moderated
  • Favorites
  • JUstTest
  • everett
  • magazineikmin
  • mdbf
  • thenastyranch
  • khanakhh
  • rosin
  • Youngstown
  • ethstaker
  • slotface
  • modclub
  • kavyap
  • DreamBathrooms
  • Durango
  • provamag3
  • ngwrru68w68
  • InstantRegret
  • tacticalgear
  • GTA5RPClips
  • cubers
  • normalnudes
  • osvaldo12
  • tester
  • anitta
  • cisconetworking
  • megavids
  • Leos
  • lostlight
  • All magazines