"COVID and long COVID are not HIV/AIDS, but our response to both viruses has been to bury them, to cover disabled and high-risk people with dirt. There is silence, skepticism and denial as many of us have become immunocompromised, as thousands have died of complications of long COVID, as millions have died of COVID."
Beautiful essay by #LGBTQ columnist Miles W. Griffis reflecting on AIDS, #longCOVID, and the work of artist David Wojnarowicz.
"#MEAction recognizes that everything seems to cost a little bit more these days...as it is now costing us a little bit more to provide the programming and resources needed for this community. If you have a few extra dollars to give, we would greatly appreciate it."
"The results revealed significant differences in the neurophysiological parameters of P300 & beta band rhythms in subjects affected by cognitive fog, and these alterations persist even 8 months after recovery from #Covid19"
"I have sat through countless GP appointments where I have had to explain the basics of Post Exertional Malaise [PEM], the cardinal symptom of ME, before going on to discuss treatment."
I've had similar doctor visits.
It's frightening that so many doctors know so little about ME/CFS.
🔴 These findings demonstrate that transfer of IgG from Long COVID patients to mice replicates disease symptoms, underscoring IgG's causative role in Long COVID pathogenesis.
A thread for sixteen #MECFS, #LongCovid and related research papers from w/c 27th May 2024.
Links are to our forum discussion threads, where abstracts, links to paper, analysis and discussion can be found. Inclusion does not equal recommendation.
Disabled and chronically ill person withbsupport needs is raising money for basic necessities, food and an immigration Visa to remain in partner's country.
$50 of $600 raised!
(We're getting there!, please boost if you cannot donate!)
This is from posting pretty much solely on #MECFS , #LongCovid and related conditions and to a lesser extent chronic illness in general, which shows it is possible to build up followings on them, in case people either gave up on them or never tried.
"In our unmatched comparison, we observed that, following #COVID19, POTS and ME/CFS yielded higher rates than after negative testing. In absolute terms, we observed #POTS & #MECFS diagnoses to have a similar disease burden as DM [diabetes]"
"The lived experiences of people with #LC, in relation to their condition and their experiences of healthcare services have provided a primary source of evidence”
#FollowFriday I recommend @IrishMECFSAssociation if you are interested in studies and #research about #LongCovid#MECFS etc. They provide international informations.