@soheb@pkutalk.com avatar

soheb

@soheb@pkutalk.com

Software Developer with #PKU. I made PKU Calculator, and PKU Talk. From the #UK.

This profile is from a federated server and may be incomplete. Browse more on the original instance.

soheb, to music
@soheb@pkutalk.com avatar

Spotify officially demonetises all tracks with under 1,000 streams

This is just an insanely bone-headed move that is so pointless.

These artists don't even get paid that much money, and yet Spotify wants to cut off their revenue.

I'm done with Spotify. In fact, I think I'm flat-out done with music streaming services. All of them are exploitative. back to buying digital albums for me.

https://djmag.com/news/spotify-officially-demonetises-all-tracks-under-1000-streams

soheb, (edited ) to random
@soheb@pkutalk.com avatar

Our very own @poconnor has released her latest newsletter out today! You can read it here:

https://mailchi.mp/a0ea72f0e82a/pigpen-newsletter-pku-brain-injury-and-mental-health-9105380?e=c53e4b7d0f

But here is the major news:

🚨 Half of the profits of Living With PKU is going to the NSPKU between June and July!! 🚨

If you have even the slightest of curiosity about #PKU, please pick up the book here: https://books2read.com/u/3GWYnd?ref=pigpen.page

Boosts are incredibly welcome and encouraged!!

#boost #boostok #boostswelcome #pku #phenylketonuria #phenylcetonurie #lowprotein

soheb, (edited ) to random
@soheb@pkutalk.com avatar

Are you a morning person or a night owl?

soheb, (edited ) to uk
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Just out of curiosity, do you pay for your tv license? Only applies to UK folks, sadly!

#uk #boostsOk #tvLicense #bbc #britishBroadcastingCompany #streaming #tv

soheb, to random
@soheb@pkutalk.com avatar

Pro tip: wear a Covid mask to get some space to yourself on the train 👍

soheb, to random
@soheb@pkutalk.com avatar

Hey everyone, please welcome our newest member of PKU Talk: @truthaboutlifewithpku !!

He has his own blog called Truth About PKU where he talks very openly about his battles with PKU and getting back on the diet:

https://thetruthaboutlifewithpku.home.blog/

If you’ve ever felt lost with PKU, then please give this a read! It’s such a brilliant blog, it needs to win a medal 🏅

soheb, to Morocco
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Just reading @truthaboutlifewithpku's new blog post, titled "Learning to be Thankful for PKU". It is an incredibly humbling blog post about having PKU in a country where support is available.

You can read it here: https://thetruthaboutlifewithpku.home.blog/2023/06/28/learning-to-be-thankful-for-pku/

soheb, to random
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If you see this post, do you mind boosting it? I'm trying to get my PKUTalk.com server to reach more lovely folks on Mastodon, and the easiest way to do so is a #boost.

Thank you very much!

soheb, to 3goodthings
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#3goodthings

  1. it's friday
  2. lovely weather
  3. got nothing planned for the weekend, which means hopefully I can do nothing but sit in the garden and enjoy the sun!

@3goodthings

soheb, (edited ) to books
@soheb@pkutalk.com avatar

Calling all book lovers on Mastodon!

@poconnor has now launched the kickstarter for her new book - The Red Hat Stories.

Go and give your pledge to an independent author, and feel good knowing you'll get a great book in the process!

https://www.kickstarter.com/projects/328522180/the-red-hat-stories

soheb, to reddit
@soheb@pkutalk.com avatar

So you may be wondering what places to go now that #reddit is slowly going away, but luckily there are federated alternatives, like #lemmy and #kbin! Even better - you don’t need an account to post there!

Here is a 🧵 on how to get up and running!

soheb, to random
@soheb@pkutalk.com avatar

Just a reminder for my UK folks, clocks go back 1 hour at 2am this Sunday.

This means it will be start being spooky at 5pm, but hopefully a bit more brighter in the mornings.

soheb, to random
@soheb@pkutalk.com avatar

Hey all! Mark has launched his fundraiser campaign on Facebook for his birthday!! All proceeds go to the NSPKU :nspku:, so please donate generously!!

https://www.facebook.com/donate/3681149432168479/1050854662997700

soheb, to random
@soheb@pkutalk.com avatar

Yep, Apple’s breaking iPhone web apps in the EU

Absolutely stupid, not at least surprising. PWAs mean that less developers will be forced to use Apple's IAP and subscribe to their yearly fee (£80), and thats a significant cut to Apple's bottom line.

Bear in mind that Android has no issues with PWA.

https://www.theverge.com/2024/2/15/24074182/apple-drops-support-iphone-web-apps-eu-dma

soheb, to Stoicism
@soheb@pkutalk.com avatar

If you haven't heard, @poconnor is donating half of her profits from "Living with PKU" to the NSPKU - a fantastic charity that helps people with the rare disorder called PKU!

And if you buy both of her books, you get 25% off!

Get her books here now:

https://pigpen.page/books/

Also, please boost! Boosts are incredibly welcome!!

soheb, to Steamdeck
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Got San Andreas on my #SteamDeck 😏 @ClairTheGinger

soheb, (edited ) to random
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I'm going to be sharing some photo album of the slides at the ESPKU event. This will be a thread! 🧵

These slides are all on Google Photos, but if you want the photos on another service (like Outlook or iCloud), let me know and I can try and get them shared.

soheb, (edited ) to random
@soheb@pkutalk.com avatar

People who are over the age of 30 and play video games on Xbox or PlayStation, when was the last time you played games on your games console, and if you can, please elaborate which console and when?

I’m trying to see how many of said folks are actively playing these consoles. I fully expect younger generations to play on said devices, but I do wonder how the over 30s get along with time management, cost of games, cost of living etc how they are managing…

#games #videogames #gaming

soheb, to random
@soheb@pkutalk.com avatar

I have done it!! I have made the perfect Mogo Chips!!

Mogo is basically Yuca/Cassava, and you can get pre-cut mogo chips (as seen here): https://www.sanjanafeasts.co.uk/2023/06/mogo-chips-yuca-fries-or-cassava-fries-bomb-sauce/

It's super simple to make, too!

  1. Boil frozen mogo chips for 15-20 mins until mogo chips are soft in the center (like potato, you got to poke them with a butter knife to see if it's properly cooked or not)

#pku #livingWithPKU #classicalPKU #phenylketonuria #lowProtein #vegan #food

soheb, to random
@soheb@pkutalk.com avatar

I have witnessed the worlds thickest wasp trying to get out of my room.

At first I ran out of my room like the coward I am, and then I came back half an hour later to see if the wasp had gone.

Still there.

So I think “hmm, maybe the window isn’t quite big enough and curtains are stopping it from leaving” so I open the window wider and move the curtain back. Come back half an hour later.

Still there.

soheb, to random
@soheb@pkutalk.com avatar

A question to the PKU community:

What would you say to parents who have just discovered that their child has PKU?

soheb, to random
@soheb@pkutalk.com avatar

As you may know, I’ve been talking about @poconnor and her book “Living with PKU” (buy here: https://pigpen.page/books/) because half of the profits go to the NSPKU charity during June and July.

But it might help to explain what the NSPKU does, so here goes (may be a 🧵):

First of all, when parents have a newborn child, their child has a newborn blood spot test after the baby is 5 days old.

soheb, to books
@soheb@pkutalk.com avatar

Excellent news, book gang!

@poconnor's new book - The Red Hat Stories - has reached nearly 60% funding in less than 24 hours!!

Let's keep the momentum going!

Go and give your pledge to an independent author, and feel good knowing you'll get a great book in the process!

https://www.kickstarter.com/projects/328522180/the-red-hat-stories

soheb, to random
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soheb, to random
@soheb@pkutalk.com avatar

So I increased my exchanges from 6 to 7 exchanges, and my levels was... 400umol/L!! Woop woop!

https://pkutalk.com/@soheb/112540412123779295

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