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soheb

@soheb@pkutalk.com

Software Developer with #PKU. I made PKU Calculator, and PKU Talk. From the #UK.

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soheb, to random
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Just hopping onto #GoogleIO, and it seems they are playing catch up with Apple?

soheb, to linux
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I've admittedly been having the time of my life with Linux

I stopped using Linux roughly when Windows 8 came out and suddenly all desktop environments were chasing that tablet computing trend (???) instead of treating PCs as, y'know, PCs, but recently got back in with a spare Thinkpad T480 I bought off eBay for cheap.

I have to say, Zorin OS is amazing and incredible. Would recommend.

soheb, to random
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Trying to be a grown-up with his own house and having to deal with PKU has it's challenges - like trying to find new, inventive ways to have low protein food and have my exchanges all in one go, three times a day, every single day.

This is going to be a thread 🧵 - feel free to read more below 👇

#PKU #livingWithPKU #ClassicalPKU #boostsOk #thread

soheb, to music
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Spotify officially demonetises all tracks with under 1,000 streams

This is just an insanely bone-headed move that is so pointless.

These artists don't even get paid that much money, and yet Spotify wants to cut off their revenue.

I'm done with Spotify. In fact, I think I'm flat-out done with music streaming services. All of them are exploitative. back to buying digital albums for me.

https://djmag.com/news/spotify-officially-demonetises-all-tracks-under-1000-streams

#music #spotify #NoSpotify #streaming #StreamingNews #tech #technews #technology

soheb, to random
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Just done the blood spot. Very happy with the blood spot circles!

soheb, (edited ) to random
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We've been getting a little bit of growth (especially for such a niche community!) so I figured I might as well shout out everyone who has made it here so far, so you can say hi! A 🧵

The one and only @pcublogue - he has been with me with the start. Super friendly and incredibly awesome dude! His blogs are definitely worth a read:

https://www.phenylcetonurie.com/

@poconnor - our very own PKU writer, and owner of a very very fluffy dog!

soheb, to random
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Just a heads up for all the folks who may be attending the ESPKU/NSPKU conference this Thursday-Sunday, I'll be there for all the four days!

I'll be posting here and on Twitter when I'm ready, so please do say hi if you are attending!

#NSPKU2023 #ESPKU2023 #NSPKU #ESPKU

soheb, to random
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I don't know if folks on PKU Talk are aware or even care that Threads are going to integrate with Mastodon.

Earlier this year I made the decision to effectively block integration with Threads. I think later on I "muted" Threads rather than a full on block.

I'm now walking back from all of that, and allowing that integration from Threads, whenever it will happen.

Thread below 🧵👇

soheb, to Games
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What are some good casual games?

I’ve been playing vampire survivors in bed with my steam deck, but I’d like to know if others have any other good casual games that they enjoy?

#games #gaming #casual #steamdeck

soheb, to random
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As you may know, I’ve been talking about @poconnor and her book “Living with PKU” (buy here: https://pigpen.page/books/) because half of the profits go to the NSPKU charity during June and July.

But it might help to explain what the NSPKU does, so here goes (may be a 🧵):

First of all, when parents have a newborn child, their child has a newborn blood spot test after the baby is 5 days old.

soheb, to random
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So, am I the only unlucky one that walked away with flu from the ESPKU??? :pkuawareness: :captainphelix: :nspku:

soheb, to mastodon
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Whoever made the @mammoth app, I just want to say I love you and you are amazing.

Genuinely the first Mastodon app I’ve used that has:

  • Polish
  • Intuitive UI
  • A way of finding content and content creators so easily

It genuinely feels like Mammoth should be the official Mastodon app, no lie.

I just hope it’s available on both Android and iOS (I don’t think so).

#mammoth #mammothapp #mastodon #mastodonApp

soheb, to random
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For folks who have used PKU Calculator - I've been thinking about winding down the diet management side of the app for quite some time now, as well as winding down iOS and Android apps.

I'm super proud of said apps, but the truth of the matter is that these apps do take a long time out of my life to maintain. If I had a team of developers and testers, then this would be easy. That, and Apple/Google bureaucracy has killed the fun for me.

#PKUCalculator #pku #phenylketonuria #phenylalanine

soheb, to random
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It’s my birthday today!! 🥳🎉

Very Funny Oops GIF by America's Funniest Home Videos

soheb, (edited ) to random Czech
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IT’S COMING HOME!!

IT’S COMING!!

BLOOD TESTS COMING HOME, IT’S COMING!!

Now, these are prototypes, BUT!

  • Result in 2 mins
  • Records in app
  • Results get sent automatically to doctors

Your move, post box 📮♟️

soheb, (edited ) to random
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I'm going to be sharing some photo album of the slides at the ESPKU event. This will be a thread! 🧵

These slides are all on Google Photos, but if you want the photos on another service (like Outlook or iCloud), let me know and I can try and get them shared.

soheb, to Health
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The past few days I’ve been taking creatine powder. From what I can see on YouTube, it’s used by gym enthusiasts to help them lift more weights and recover quickly.

As I’ve been feeling quite exhausted from walking a lot, I’ve been trying creatine, and I can tell you I’ve been feeling far less sore on the daily! But the weirdest thing is that I realised last night I was having half the dose as I need two teaspoons rather than one, but I’m still noticing the effects!

#health #creatine #muscle

soheb, to mastodon
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If you are looking for a new Mastodon client, I’ve just found http://phanpy.social/

It’s a PWA (a web-app) that is totally free, but the ui/ux is absolutely incredible. Works on all platforms you can think of (no settings are synced yet).

But wow, colour me impressed!

#mastodon #phanpy

soheb, to random
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Very proud of myself for taking in a whole bunch of junk from my old room in my parents house and going through the process of junking electronics, selling it, and giving it away.

I have two whole bags of electronics, I’m going to see what CeX takes in, and then either give the rest away on trash nothing or just junk it.

soheb, to random
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It's honestly baffling how much having low phenylalanine has changed my life!

I used to have so much anxiety, be really indecisive about things, get incredibly frustrated when things didn't go the way I wanted to (and lets face it, when does life ever go exactly the way you want it?). And honestly, I was quite miserable to be around.

I got very serious about sorting out my knowledge about exchanges in my thirties, and it has made such a difference!!

#phe #phenylalanine #pku #protein

soheb, to random
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The toot below should be quoted.

Hopefully.
https://pkutalk.com/@soheb/112089826752972704

soheb, to random
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Guys!! A new update!!

PKU Talk now has its own video hosting platform!! Our very own @pcublogue has taken to uploading the first video to the platform. Check it out here:

https://videos.pkutalk.com/w/565PMyvQKwWJwkdkoepVGa

soheb, (edited ) to random
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Are you a morning person or a night owl?

soheb, (edited ) to random
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People who are over the age of 30 and play video games on Xbox or PlayStation, when was the last time you played games on your games console, and if you can, please elaborate which console and when?

I’m trying to see how many of said folks are actively playing these consoles. I fully expect younger generations to play on said devices, but I do wonder how the over 30s get along with time management, cost of games, cost of living etc how they are managing…

#games #videogames #gaming

soheb, to android
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Since I bought an Android phone, I bought myself an Android watch. A TicWatch Enduro.

I got it on Saturday lunchtime, and it's now Tuesday morning with 16% battery life (with the ability to go all the way down to 5%).

As someone who used an Apple Watch for about 2/3 years, I'm absolutely blown away at this thing!

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