What is Large Neutral Amino Acid (LNAA) treatment?
this is an additional treatment for #PKU which is used in certain European nations. In my book, "Living with PKU," I discussed LNAA and you'll find an excerpt on my blog: https://pigpen.page/what-is-lnaa/
I'm going to be sharing some photo album of the slides at the ESPKU event. This will be a thread! 🧵
These slides are all on Google Photos, but if you want the photos on another service (like Outlook or iCloud), let me know and I can try and get them shared.
And that’s the ESPKU done! I had such a great time!
Many thanks to @Chloeormerod@poconnor@skat plus others for chatting with me and making the event that much more better!
I also have pictures of the slides of the latest drugs that, once I’m back home, I’ll make some online album and share the album for folks who couldn’t attend to see 👍 ( @ClairTheGinger )
Thanks to COVID vaccine innovations, the technology used to kill of Covid is going to be used to generate working PAH enzymes in the body. It’s currently in very early days, but it seems very promising given it’s based off the COVID foundations…!
Many in the #PKU community will be preparing for the @NSPKU & @ESPKU conference next weekend. As a veteran of 3 conferences (I wish it were more) here are my packing recommendations:
Your supplement! (PKU food provided but you will still need your 'special drink'.)