Does anyone else have trouble sleeping after a day where you were overstimulated? I had one of those days yesterday. It's now after 3:30 in the morning and I'm still awake. My body feels tense, and when I was with my mom earlier, we noticed that I was jumpy, flinching more often when she touched me. It doesn't help that I'm not feeling great and can't seem to get comfortable. Some of my health issues are flaring. I think being overstimulated somehow triggered them. Just curious if anyone else has experienced this kind of thing. #ActuallyAutistic#autism#neurodivergent#neurodiversity @actuallyautistic@actuallyautistics@neurodivergent@neurodivergentblind@neurodivergents@neurodiversity@neurodiversity
Even therapy is ableist, apparently. The group I just had a consult with has a policy that after being late or not showing to an appointment twice, they won't continue providing their services. So if you have a disability that can cause difficulties with timeliness, like ADHD, services can be denied to you for that reason. I guarantee you they don't provide accommodations of any sort to help mitigate the impact of this policy on care for people with such disabilities. No extra reminders. No increased flexibility. Nada.
If you struggle conforming to expectations, you will not be able to get help conforming to expectations. In my experience, the entirety of human society works this way, whatever your disability happens to be.
Not me over here crying (happy tears) reading the email my psychiatrist sent me that includes a long list of medical accommodation recommendations for me. (Leaving this intentionally vague for now)
Accessibility matters SO much. 💜
I am proud of myself for asking her to do this for me — I almost didn’t due to past trauma.
I’m looking for #books and #podcast recs about #accessibility and #inclusivedesign, especially (but not limited to) experiences with physical objects and built environments, not only digital. First-person experience or research-based, or a blend of the two. #sensory and #neurodiversity related as well.
I'm actively adding to my reading and listening list, so any and all recommendations are appreciated! Just finishing Andrew Leland's The Country of the Blind: A Memoir at the End of Sight today.
How did you make a more robust sense of self? How do you know when your sense of self is strong or weak? Interested to hear people's lived experiences.
Years of dissociation and masking makes it hard to feel what is me.
This behavior is like a broken record for me. Thankfully I usually find another hyperfixation pretty quickly, but I won't lie and say I don't wish I could just stick to 1 or 2 hobbies...😬
This was the article that made me go, "Okay, it's not my imagination. The inability to know how long it takes to do something, inability to focus on/complete tasks other people have no problem with--that's not me making up excuses, that's how this particular car drives"
And this was AFTER diagnosis. My internal monologue was that I was screwing up. Part of me was still buying into decades of "just concentrate, you can do this" bullshit.
Great to see @JohnGHendy's "Life on Delay: Making Peace with a #Stutter," in @nytimes' Paperback Row this morning. It's a milestone in discussions of #neurodiversity.
I’m interested in memoirs, blogs etcetera telling stories of resilience, surviving psychiatry, trauma (developmental). Please share them if you know any. #MadLiterature
Lisa Wallace on why she left psychiatric care and why she may return one day
"The NDS is a coherent set of standards and principles that combine neurodiversity and user experience design for Learning Management Systems. Design accessible learning interfaces to support success and achievement for everyone."
As a teacher and school admin, I've always been annoyed by the DSM-5 labels we apply to kids, full of D words like disorder & deficit. I finally got around to writing about it and proposing a different model:
With so many breaking news stories these past few months, it's been a while since I've released any new community topics. But we're back! I've spent the last couple of weeks curating a topic space on Flipboard for the Disabled Community, where you can find all the latest content about, for, and by the differently-abled. It's been such an eye-opener discovering all the publishers, creators, and brands doing their thing in this space. You'll find them all in our new topic, along with subtopics for specific disabilities -- whether mental, intellectual, emotional, or physical -- and for all facets of the community, from disability rights to assistive technologies to parasports. While I was at it, I was also able to curate a couple of subtopics specifically for the deaf and blind communities, plus a bonus topic on Neurodiversity. Check them out below!
#Lifehacking is in pretty bad odor these days, and with good reason: a once-useful catch-all for describing how to make things easier has become a pit of #ProductivityPorn, grifter hustling, and anodyne advice wreathed in superlatives and transformed into SEO-compliant listicles.
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If you'd like an essay-formatted version of this thread to read or share, here's a link to it on pluralistic.net, my surveillance-free, ad-free, tracker-free blog:
@pluralistic I can get behind this. All of it. I dunno if any other #neurodiversity folks feel this, but today's lifehacking and #ProductivityPorn poison the well so it's hard to discern the genuinely good advice from shit that gets peddled so it's easier to extract your 'superpowers' for profit.
I think it was something you said about Google Maps as a prosthetic for your sense of direction that led me to write about my re-discovery of journalling as something similar: