Very spasm-y legs when I went to bed last night, but an ibuprofen and a couple of drops of cannabis oil and I slept right through. Surprising, but most welcome. It bugs me that I can’t get access to this legally without huge expense. It’s a game changer.
COVID-19 found to increase risk of hospitalization, death in multiple sclerosis (MS): Study.
Researchers say findings in England show threat 'still very real for many'
"With new variants constantly emerging, people living with MS should be considered an important high-risk group for COVID-19 hospitalization and death for which additional preventive measures and multilayered public health protections are urgently needed"
MS patients face much greater risk of hospitalization, death from COVID-19, despite high rates of vaccination.
"These findings indicate that vaccination alone may not adequately protect individuals with MS from severe COVID-19 outcomes, and underscore the urgent need for additional preventive measures against COVID-19 in this vulnerable population, say researchers."
'Inverse vaccine” shows potential to treat multiple sclerosis and other autoimmune diseases'
"has shown in the lab setting that it can completely reverse autoimmune diseases like multiple sclerosis and type 1 diabetes — all without shutting down the rest of the immune system."
1/n
Hello people in the little glowing pocket rectangle, my sister and my adorable nephew are raising money for the National Multiple Sclerosis Society on behalf of my mom who has MS. If you could donate (and don’t forget employee matching!) I’d appreciate it and will even post a new corgi picture for each person who replies that they donated. Any little bit helps! #WalkMS#MultipleSclerosis
March is #MultipleSclerosis Awareness Month and boy am I aware right now. How many doctor’s office fish tanks have I sat in front of throughout my life?
MS is a neurological condition where your own immune system attacks the myelin sheaths that protect your nerves. It can manifest for folks in any number of ways. For me, it has presented itself as optic neuritis, vertigo that lasts for weeks on end, intense numbness and tingling and pain from my rib cage down and more. #MSAwareness#FuckMS 1/4
Our focus for March is Multiple Sclerosis. Join the Servant of All team as we discuss the challenges many face receiving proper diagnosis and treatment, as well as ways to support those who cope!
I got a leg brace to use when running a couple of years ago. I have foot drop and a general loss of strength & was falling over a lot. Since then, I’ve managed to stay on my feet. I’m not running quickly, but I am still running. I fell over this evening and scuffed up my knee, but I’ve been a bit MS-y for the last few days and it was an uneven bit of path. I’m choosing to see the bigger picture. Just a (literal and figurative) bump in the road. #MultipleSclerosis#running#AccidentalOptimist
Let's Get down to business! To defeat, the autoimmune encephalitides!
Autoimmune Encephalitis is the next topic I will cover.
As much as I want to skip it because its by a UCSF presenter, I'm sure they are not all scourges and shills like Vinay Prasad MD, Monica Gandhi MD (who are in part funded from Enron billionaire money from John Arnold, whom Forbes has referred to as "a disgraced former executive of Enron.")
Richard Jin MD/PhD presenting along with a pediatrician at NIMH, Dr. GenaLynne Mooneyham MD
His primary thesis is neural-immune interactions that may influence neurodevelopment & psychiatric disorders, so more in the lifespan but who knows, possibly some relevance to #LongCOVID, #COVID19, and post-viral neural disorders such as #MultipleSclerosis
"After decades of frustration and failed attempts, scientists might finally be on the cusp of developing therapies to restore immune ‘tolerance’ in conditions such as diabetes, lupus and multiple sclerosis." #Diabetes#Lupus#MultipleSclerosis
Very pleased to dip under 30 mins at #parkrun today. This is more than 8 minutes slower than my PB, but as my #MultipleSclerosis has progressed, this is now some going. Felt okay too on a chilly day, although a lake swim (5.9 degrees) and sauna (85 degrees) left me incapable of anything but a 2 hour nap when I got home. Still, a good day.
One of my most beloved relatives suffered from the devastating disease #MultipleSclerosis. So I pounced on this week's @nature piece on it, but both the news item and the (no fewer than 4) accompanying papers from Willerslev's group at #CopenhagenUniversity are about so much more than MS - thosands of years of human #migration, #evolution and indeed who we are in #Europe Worth a read (I fear it may be paywalled though)
We were contacted by a local agency that would like a presentation on educating their clients on how to prepare and stay safe during an emergency
"Many of the patients are in wheelchairs or use some sort of mobility assistance and a significant amount of them are seniors."
We are considering focusing on three topics:
"72 hour kits" with attention to things like backup generators/inverters, extra medications and/or equipment, and portability.
sheltering in place
planning for evacuation
We are waiting to hear if these folks are in licensed care homes of any sort (in California licensed facilities would be required to have emergency plans in place)
Would there be anything else that we should cover?
I fucking hate IV steroids so much. It’s like being on drugs, but skipping straight to the shitty come down, complete with existential terror and regret. #ChronicIllness#MultipleSclerosis#steroids