This is from posting pretty much solely on #MECFS , #LongCovid and related conditions and to a lesser extent chronic illness in general, which shows it is possible to build up followings on them, in case people either gave up on them or never tried.
@tomkindlon@longcovid@mecfs As someone with #fibromyalgia I find that we're mostly forgotten in the chronic illness community. While I would love to connect more, I have stopped talking about it because it's considered the "hysteria" of the modern era. I have some unique theories on what caused mine. But there is a much larger community around some illnesses than others.
So my pain level has hit 9, and I stayed there for the past two hours. and my sweet child is pissed and complaining that I am "acting like a whining little bitch"...
it has to be paid for them to cut the water back on
please, if anyone can help me get my water back
please
I'm a disabled non-binary person (ADHD and bipolar), my partners are both disabled as well (anxiety and depression, as well as my wife having fibromyalgia)
I'm working as much as I can, but my job doesn't pay a living wage
In this study, having previously received an functional somatic syndrome diagnosis such as CFS was associated with female sex and poor health-related quality of life. No association was found for health anxiety, kinesiophobia and physical activity.
So I need to make more space and lose more of my own living space to move the AC so that the temp differential doesn't kill the TV that I can not afford to replace.
I needed to get spoons to get up and do this, as I am bed-bound.
My 11 yro is angry that I am not doing what he wants, and would not let me do what I needed to get spoons, he stole my spons.
And now he is livid at me, because I have less spoons than I started the day with, I can't do now, hell I can't even eat now.
And he is screaming at me blaming me for not doing what needed to be done so he could get what he wanted in the first place.
I am so exhausted and overheating with my meds; if I overheat, bad things happen.
And he just doesn't get it.
As far as he is concerned, it's all my fault that his day and plans, which he never shared, to begin with, are ruined.
Positive news for the day: The doctor filled out forms for me to get an accessible parking permit! Fingers crossed that it gets approved. This would be so majorly helpful for me, particularly on high pain days! I don't drive, but sometimes, I get rides places and all the walking can make my pain worse. #ChronicPain#Fibromyalgia
#WordWeavers 2404.29 — Who's feeling shame in your story? Is it justified?
/It's'a [#brainfog#fibromyalgia day, but I'm gonna write this to get something out. Hoping it's coherent. —RS/]
This question made me think hard for quite awhile until I—like an artist or a photographer deciphering how shadow defines volume and dimension—saw /negative space/ in a story... where something wasn't. Emptiness.
Wintereyes /doesn't/ feel #shame, and I'm realizing this is an #emotion with which I can make a #feminist point in my story. Whilst shame is IMHO used more often to control women than it is men, it is both incidious and /learned./ Shame is a combination of built-in emotions programmed into a person to make a person self-punish for "wrong" behavior even if it's secret; it's related to, but not the same as guilt.
Wintereyes was raised by wolves, but not until she was 7 when her "gift" caused her to seek a second set of parents. Her early childhood will require investigation in another story, but I'm pretty sure her human parents didn't teach her the emotion; it's not that she forgot. Forced to live again amongst humans over a decade later, to become more human, people's behavior baffles her. Late in the story, when she's asked to disrobe by stylist at a modeling shoot, and does without a thought, the stylist observes, "You don't feel shame, do you?" This is where Wintereyes will go off like a firecracker, and it should be very interesting.
The stylist may actually feel ashamed...
The author is [#actuallyautistic and retains copyright (c)2024 R..S.]
The Psychology of Getting High—a Lot (nautil.us)