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"Parents of children with #longCovid claim they have been accused of faking or exaggerating their child’s illness, leading to social services’ involvement and... court cases and the threat of the child’s removal from the home."
Dr Barnden and his team at Griffith University & the University of Queensland have recently published new findings showing increased neurochemical levels in the brains of people with ME/CFS & #longCOVID
(US) Solve ME/CFS Initiative has created an automated tool (meant for folks in the USA) https://p2a.co/tE8DZk8 that will contact your Member of Congress & ask them to support a new "home" for "Infection-Associated Chronic Conditions and Illnesses" (IACCIs).
WASHINGTON, April 9 – Sen. Bernie Sanders (I-Vt.), Chair of the Senate Health, Education, Labor, and Pensions (HELP) Committee, today released a draft legislative proposal to address the Long COVID crisis that is negatively impacting the health of some 22 million Americans....
People with Long COVID in Australia have poor health outcomes that are comparable with another emerging disease known as myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
I think diagnoses like #LC & #MECFS are important for those ill after an infection to help adapt to the impairments, not get worse from pushing/having to push, etc
Developing effective strategies to optimize physical activity and cardiorespiratory fitness in the long Covid population- The need for caution and objective assessment
"A clinical trial to test if the fibrinolytic enzyme Lumbrokinase improves symptoms and mitigates blood clotting issues or platelet hyperactivation in patients with #LongCOVID, ME/CFS, & LongLyme disease."
We have made images of the charts from the analysis of PubMed publications data for #MECFS & #LongCovid available in our Google Drive, for use by anyone in advocacy 📊
A Randomized Double Blind Placebo Control Trial to Determine the Effects of Oxaloacetate on Improving Fatigue in Long COVID
Compensation: "Eligible participants will be compensated $50 for each in-person visit. At the end of the study, participants will be provided with a 45-day trial of oxaloacetate if they are interested"
#COVID Isn't Going Anywhere. Masking Up Could Save My Life
Alice Wong writes about trying to keep safe in the pandemic as a high-risk person. "The normalization of repeated infections, preventable deaths, & anti-science propaganda is tearing the fabric of society, with the most marginalized hanging by a thread”
#LongCOVID & ME/CFS have overlapping symptoms, yet many studies overlook the proportion of individuals with long #COVID who meet ME/ #CFS criteria. Read more about current estimates of the proportion of individuals with long #COVID19 who meet #MECFS criteria:
An essay inspired by Giorgia Lupi's recent high profile article in the NY Times, also detailing the author's experiences. "It is September, 2022, the beginning of the waiting rooms. I'm glad I don't know what's coming. The very first doctor that I see says the pain I feel is anxiety”
Good piece by a #longcovid and #mecfs patient @longcovid
Quotes:
This is Long COVID, a multi-system, multi-organ complex chronic disease with no diagnostic, approved treatment or cure.
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Employees who are not recovering are falling out of the workplace
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we would be investing in solving the root cause with a focus on biomedical treatments and the objective of curing all infection-associated chronic diseases
David Tuller DrPH Interview with journalist Ed Yong
"Last month, Yong wrote an opinion piece for The New York Times in which he discussed what he learned as a #journalist from covering #longCovid. He & I spoke earlier today about the Times piece, how he came to grasp the seriousness of long #Covid, & related stuff." 35 minutes.
NEWS: Chairman Bernie Sanders Releases Long COVID Moonshot Legislative Proposal | The U.S. Senate Committee on Health, Education, Labor & Pensions (www.help.senate.gov)
WASHINGTON, April 9 – Sen. Bernie Sanders (I-Vt.), Chair of the Senate Health, Education, Labor, and Pensions (HELP) Committee, today released a draft legislative proposal to address the Long COVID crisis that is negatively impacting the health of some 22 million Americans....
Health outcomes for Long COVID are comparable with ME/CFS (news.griffith.edu.au)
People with Long COVID in Australia have poor health outcomes that are comparable with another emerging disease known as myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).