I'm seeing folks casting about trying to build their support systems, but not always clicking. Like the structures aren't there yet, lots of people are tooting out to crickets.
So this is a general call out pls share:
active tags (or groups) that are helping you connect and be uplifted
gaps or struggles ie "I can't find a tag/group for [ ]
any tags/groups you are trying to launch
Let's create and consolidate and enliven the tags we need.
@vlrny Would be nice to find people to connect with when dealing with #anxiety or #chronicpain. Even if that is distraction or meeting new people. Also, I can sometimes be more active at #night in the U.S. Have a great day everyone and stay warm if you're in the path of this winter storm.
My scooter doesn’t have a tight turning circle so using it on a bus is a lot harder than my powered wheelchair but after my lesson today I feel confident enough using it on buses 😀
Empire of Normality
Neurodiversity and Capitalism
by Robert Chapman
This is a priority read for me!
I’m looking forward to how Chapman explains the emergence and rise of the pathology paradigm and its entanglement with the fundamental logic of capitalism. Specifically how the medical and scientific definitions of illness, disability, and normality have grown in response to economic and ideological developments.
It is always "fun" to have medication that is supposed to make you sleepy and deepen your dream stages - and thus is taken before bedtime....and realize your body reacts to it paradoxically so you need tonstart taking in the morning instead and wonder if your doctor is going to be happy with you when you inform them.
Just like how stimulants calm down the endless mass of mental hyperactivity instead of making me a durasel bunny - this fucked my sleep.
For Hazlitt, Richa Kaul Padte considers the singularity of her relationship with the one doctor that helped her find relief for an unexplained chronic illness: "She witnesses me, week in and week out, in my life: the critically sick kittens I rescued, my writing aspirations and frustrations, my rage at the government."
…the need to offer a positive account of mental illness—one that does not define the essence of mental illness exclusively as the absence, lack, or failure of the power of reasoning…
On the Importance of Conceptual Contrasts Madness, Reason, and Mad Pride
Awais Aftab
I'll try to be at work tomorrow for hiisikoloART and reply emails, work on commissions, and all that jazz.
However, if I am not replying or seem to be still off this week it's because I am going to start new medication for chronic pain tonight and don't know if it is going to give me side effects that halt my ability to work. If the issues dont pass in a week or so, I'll go off the meds and just deal with pain so I can work.
Between going out in the cold after only 2 hours of sleep, and the stress of my worrying about the test, my #fibro is flaring big time. I'm going to go relax in bed, and try to recover. 💤
I handled the peopling fairly well. The Lyft driver over there this morning was cute, with great mom energy. Of course, she was the age of my own kids. 🤷♀️ But she helped me to relax a bit. 💜
I’ve been using the built in Heart tracker app, a sleep tracking app w/ HRV, and Cardiogram to help monitor my #PEM … but I still overdo it resulting in a chain of crashes and resetting my baseline rather than moving on a recovery path. I’ve been stagnant for 6-8 months. (18 month journey)
I’m curious about your experiences. Pls feel free to share below.
I desperately need an #advocate. A #medical advocate to be precise. If you are able to help, let me know. Do you know anyone else who can help? Yes I’ve checked all the lists books are closed. #Melbourne best but anywhere in #Australia is ok you can dial into any meetings.
Y'all ever recover from a nasty #PainFlare or whatever, and feel so good that you fuck yourself by overdoing shit?
Friday night, Hannity the #KidneyStone finally settled into his current home; I did THREE whole chores, then on Sat I picked up a shift at work.
Now I'm paying for my ambition and spending Sunday in bed. I'm bummed - we were gonna have SNACKS at the mid-morning #FriendsMeeting before worship & share our #Convincement stories.
I am in a lot of pain tonight. I am so tired of this dynamic disability bullshit. It was tough just making tea in the kitchen. Sigh. #disability#dynamicdisability#chronicpain
I'm a firm believer in making space for marginalized people. I am a minority in many ways, except that I am white. I acknowledge that privilege, and try to use it to benefit others.
This is how my body has worked for several years. I can walk for hours, but if I stand for any length of time, my back screams bloody murder to the rest of my body. #Disability#ChronicPain
I am faced with eternal dilemma that I would like to HAVE kroketten and chocolate gateau, but I do not wish to stand up and MAKE either of those things...
I set aside this whole day for kitchen baking and puttering and now... blah.