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🇩🇪 75 Jahre #Grundgesetz – und #CDU-Frau von der Leyen höhlt es über die EU Schritt für Schritt aus. #Zensursula’s EU-Kommission hat in den letzten fünf Jahren auf den Weg gebracht:
🇬🇧 Ursula von der Leyen has been continuously eroding our fundamental rights. In the past five years, her EU Commission proposed:
❌the end of private messaging and secure encryption #ChatControl
❌introducing unique citizen identifiers #eID
❌a working group to resurrect indiscriminate #DataRetention#EUGoingDark
❌essentially unchanged online tracking & micro-targeting practices #DSA#politicalAds
❌legalising #Europol's unlawful bulk data collection practices
❌ultra-fast cross-border online content removals without court orders #TERREG
❌allowing for #biometricMassSurveillance in the #AIAct
❌granting industry access to our #healthdata without our consent #EHDS
Von der Leyen’s Europe needs digital freedom fighters! #Pirates
"More than 180 New Zealand public agencies have transferred masses of data to Microsoft cloud computing servers in Australia for storage and processing since 2019. Sensitive courts data could be headed that way."
"The NDMS [National Disease Management System] was being hosted within a 'private isolated section' of Amazon's 'cloud' of data warehouse servers in Sydney."
#EU#HealthData#EHDS#DataProtection: "After almost two years of legislative negotiations, lawmakers from the European Parliament and EU member states have agreed on a compromise for the new European Health Data Space (EHDS) last week.
Unfortunately, the EHDS compromise will expose everyone’s medical records to unnecessary security and privacy risks in the name of research and “innovation”. It mandates every hospital and every doctor to share the private medical data from every single patient—for the purpose of secondary use, i.e. unrelated to the patient’s treatment—with a national agency, the so-called health data access body. Exactly how and what patient data is going to be shared may vary from member state to member state." https://edri.org/our-work/new-eu-health-data-law-endangers-medical-secrecy/
Gibt es eigentlich Geräte die Körperfunktionen messen wie Puls Schlafqualität (fitnessuhren etc.) und das nicht hochladen in irgend eine cloud und am besten als Text Datei an den eigenen PC senden können. #fitnesstracker#healthdata
Looking forward to a deep-dive discussion at #PrivacyCamp24 comparing #healthdata regimes in the #EU and #UK and how (and if at all) they protect #patients' rights.
3/15 At the same time, @bisilisib will lead a conversation on #HealthData 🏥 with Elisa Leila Elhadj from KU Leuven, Nicola Hamilton from Understanding Patient Data, Benoit Marchal from Opens profile photo
PicAps Association & Francesco Vogelezang from @greensefa@europarl_en
#HealthData#EHDS: Today the EU Parliament rejected my amendment to ask patients orally before sharing their patient records for research and product development. Apparently Social Democrats, Christian Democrats and Liberals prefer complicated opt-out procedures that nobody uses.
❓DYK? The way that data is stored regarding medicines #Pregnant women take varies from country to country. @IMIConcePTION outlined a framework to optimise and standardise the way that this data is collected, analysed & reported. 👉https://europa.eu/!9mmFCC#EUResearch#HealthData
A pan-European consortium is gathering data from over 1 million patients to tackle cardiovascular diseases head-on by personalizing its prevention and treatment.
iCARE4CVD, now funded by @IHI, brings together 33 global partners for this effort with SIB’s Vital-IT group providing invaluable expertise in data harmonization and federated analysis.
"Enter the national data platform - the foundation for a $700m-plus overhaul of data and digital health..."
"The new platform will need to be able to take over, merge and make sense of petabytes of data, multiplying itself daily in 28 disparate, siloed health data warehouses, and processed by a motley, often ancient crew of hospital apps numbering in the thousands."