tomkindlon, to coronavirus
@tomkindlon@disabled.social avatar

(pay wall)
"Parents of children with #longCovid claim they have been accused of faking or exaggerating their child’s illness, leading to social services’ involvement and... court cases and the threat of the child’s removal from the home."

https://inews.co.uk/news/parents-children-long-covid-accused-making-up-3034629

@longcovid
#PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC #COVIDBrain
@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #SARSCoV2 @novid #novid #CovidIsNotOver
#longCovidKids #LCKids

tomkindlon, to longcovid
@tomkindlon@disabled.social avatar

Cardiopulmonary Exercise Testing in Children With : A Case-controlled Study

https://t.ly/Wb1ps

"Children with have a reduced VO2 peak […], abnormal cardiovascular efficiency (VO2/HR% pred), pathological VE/VCO slope […], and abnormally reduced slope of VO2 work" "48% of the LC patients had a suspicious phenotype for pulmonary hypertension."

Hashtags:
@longcovid

Mity, to mecfs German

Suche Online-Psychotherapieoption für Jugendlichen (17 J) mit Long-Covid, für den es nicht möglich ist, eine Praxis aufzusuchen.

Bin für alle Hinweise und Reposts dankbar

#LongCovidKids #LongCovid #mecfs #psychotherapie

juliewebgirl, to random
@juliewebgirl@mstdn.social avatar

"Things are better now than they've ever been!"

Are you high????

I just can't.

A whole thread.

is no joke

Also, christ, take a look around outside your little techbro bubble.

Cleaning up my follows, I can't stomach what the propoganda machine does to people.

visionsofnapa, to random
@visionsofnapa@sfba.social avatar

Bernie Sanders released a draft for a proposed “Long COVID Moonshot” bill giving $1 Billion per year for 10 years to Long COVID research. Bernie is asking for input from people with Long COVID, their caregivers and from healthcare professionals here. “Please submit your comments to the Committee by email at LongCOVIDComments@help.senate.gov no later than the close of business on Tuesday, April 23, 2024.”

ProtectTheKids, to random German
@ProtectTheKids@nrw.social avatar

Tagesschau-Reportage über :
"Nach über einem Jahr mit einem -kranken Kind wünscht sich die Fam. neben Gesundheit für Lias vor allem eins: mehr Aufmerksamkeit für diese tückische Krankheit."
Wir wünschen uns dazu auch endlich wieder mehr , z.B. mit sauberer Luft in allen Schulen und Kitas🙏
💛🧡❤️💚💙💜
https://www.hessenschau.de/gesellschaft/corona-folgen-bei-kindern-wie-ein-13-jaehriger-aus-wiesbaden-gegen-long-covid-kaempft-v1,long-covid-kinder-jugendliche--100.html

themaskerscomic, to random
@themaskerscomic@forall.social avatar

Made some updates to my covid awareness and advocacy site on the homepage https://the-maskers-comic.yolasite.com , trying to get the words and information in there just right to match and address the current vibes out there... but it is still like a message in a bottle that I am not sure anyone will find, read, and take to heart in a way that would connect us all again. Feel free to give feedback.

gemelliz, to Canada

The percentage of Canadian students who miss at least 10% of the school year, or two full days a month — are up significantly.

There is no data as to why.

"Sorry, CBC News, but this article is utterly absurd [and insulting]. We have an entire new pathogen that kids can get multiple times a year. Stop feigning ignorance."

It's the COVID!!

via @Chantzy @CBCNews https://www.cbc.ca/news/canada/school-absence-data-1.7156254

pixplz, to longcovid
@pixplz@mastodon.social avatar
tomkindlon, to mecfs
@tomkindlon@disabled.social avatar
tomkindlon,
@tomkindlon@disabled.social avatar
Brad, to random

March 16, 2024- “This will be difficult for some people to accept because of the forced return to offices and classrooms, but I believe neurological harm from infection is the dominant effect in decreased performance compared to 'learning loss' from the 2020 'lockdowns'” - AJ Leonardi, MBBS, PhD
https://www.everydayhealth.com/coronavirus/even-mild-covid-infections-can-lower-iq-by-three-points/

Tooden,
@Tooden@aus.social avatar

@Brad I can't get my head around the seemingly deliberate ignoring of what has been happening since 2020. has already lasted years in some children - the first cohort to which this label was affixed. Forcing to return to unfiltered classrooms was child abuse...pure and simple.

DenisCOVIDinfoguy, to auscovid19
@DenisCOVIDinfoguy@aus.social avatar

🇺🇸US: 'Up to 5.8 million kids have long COVID, study estimates.

"The research also shows long COVID can raise the chances of a child developing type 1 diabetes. And it can even be deadly, leading to multisystem inflammatory syndrome in children."

@auscovid19

Source: https://www.cbsnews.com/news/millions-kids-long-covid-study-symptoms-mother-searching-for-answers/

Published study: https://publications.aap.org/pediatrics/article/153/3/e2023062570/196606/Postacute-Sequelae-of-SARS-CoV-2-in-Children?autologincheck=redirected

gemelliz, to random

"Kids don't come home and say, 'Mom, I have post-exertional malaise, or I have brain fog. What happens is that they start doing poorly in school, and parents find out weeks and weeks later."

Adults with long have had a whole life where we understood what it meant to be healthy and active and not have these symptoms, whereas children don't recognize they're not fully well or have the vocabulary to report their symptoms. 💔

https://www.cidrap.umn.edu/covid-19/not-little-adults-experts-say-long-covid-undercounted-misdiagnosed-kids

themaskerscomic, to random
@themaskerscomic@forall.social avatar

Another one pager worth printing off:

Olivia Belknap's COVID Safety is not and Anxiety Disorder

https://ugc.production.linktr.ee/ea79809f-8ac2-495a-b195-ca699e16a426_Covid-Safety-isnt-Anxiety.pdf

And what therapists need to know: https://covid-for-therapists.my.canva.site/

themaskerscomic, to random
@themaskerscomic@forall.social avatar

#CDCsays AIDS is not even as bad as Herpes anymore, Herpes is more common even. So go ahead a have unprotected sex. Even if you have signs of an STD, if it's kinda improving and you don't have a fever, it's fine to spread it to others. Some people might want to use a condom (like those who know we've lost our goddamn mind!).

#CovidIsNotOver #CovidIsNotTheFlu #LongCOVID #LongCovidKids #MaskUp #n95 #covid #Isolation

Delphi, to uk
@Delphi@mastodon.scot avatar

Does the #UK now have the most #inhumane #SARS_COV_2 #policies in the #developed world?

"'bespoke, non-standard method of cost-effectiveness assessment' to inform priorities moving forward"
Plain #English translation: we don't care how #sick those excluded get as we'll have more #money than you can imagine by the time the full impact of repeated #covid #infections hits the #population.
https://www.theguardian.com/commentisfree/2024/feb/15/covid-booster-jabs-campaign-spring-2024-uk?CMP=share_btn_tw
#vaccine #booster #longcovid #virus #COVIDisAirborne #COVID19 #longcovidkids

lorriberri, to disability

Support Long Covid Awareness Day in Washington DC - March 15, 2024 - subscribe to the YouTube to support live streaming http://www.youtube.com/@LCDCmarch15 and check out the website for more info! http://lcdcmarch15.com

clarkiestar, to random
@clarkiestar@mas.to avatar

We are continuing to go through the frustration of all the medical professionals immediately jumping to the conclusion that it’s psychological. Even at the kids long covid clinic!

https://www.psychologytoday.com/intl/blog/risking-it/202401/my-sons-long-covid-journey-nearly-crushed-me

themaskerscomic, to random
@themaskerscomic@forall.social avatar

This is the fancier version of my Still Coviders Venn Diagram

#StillCoviding #covid #LongCOVID #LongCovidKids #WearAMask #virtual #Shelter

olireiv, to novid

Can we add "white lung syndrome" to the long list of symptoms of
@novid

beadsland, to random

NCHS estimates of #LongCovid—based on Household Pulse Survey—provide for volatile projections.

Census Bureau released most recent mid-Oct—next update due this Wed.

As more and more folk experience Long Covid, fewer & fewer have been staffing our hospitals.

#ThisIsOurPolio #CountLongCovid #CovidIsNotOver #MassDisablingEvent

This is first toot of a weekly thread, updated daily, providing various dataviz of ongoing [#pandemic.]

Last week: https://mastodon.social/@beadsland/111326660582180098

beadsland,

Some 249 (+3) counties have pediatric care near or over capacity (≥ 90%).

Of 269 (-2) counties reporting any PICU capacity, near one in four are near or over full.

So many places where there ain't enough staff for sick or injured kids to receive required care.

#ThisIsOurPolio #pediatric #hospitals #pedsICU #RSV #Strep #Flu #LongCovidKids #CovidIsNotOver #nurses #MassDisablingEvent #CovidIsAirborne #BringBackMasks #dataviz #dataviz

beadsland,

Counties by pediatric capacity (darkest counties on map above*):

⒈ Ada, ID ≥150%*
⒉ Raleigh, WV ≥150%*
⒊ Androscoggin, ME ≥150%*

⒋ Seminole, GA ≥150%
⒌ Barton, KS ≥150%
⒍ Kenai Peninsula Borough, AK ≥133⅓%
⒎ San Juan, UT ≥133⅓%
⒏ Lewis and Clark, MT ≥150%

⒐ Gwinnett, GA—150%

⒑ Aroostook, ME—129%

  • Current map omits counties with pediatric patients but no staffed pediatric beds.

#ThisIsOurPolio #RSV #Strep #Flu #LongCovidKids #CovidIsNotOver #BringBackMasks

beadsland,

Counties by pediatric ICU capacity (circle-hatched on map above*—counties with four or fewer PICU patients omitted):

⒈ Ada, ID ≥150%*

⒉ DeKalb, GA—101%

⒊ Jefferson, TX—100%
⒋ Brazos, TX—100%
⒌ Cameron, TX—100%

⒍ Hamilton, TN—99%
⒎ Spartanburg, SC—98%
⒏ Caddo Parish, LA—98%
⒐ Durham, NC—98%
⒑ Anchorage Muni, AK—98%

  • Current map omits counties w/ PICU patients but no staffed PICU beds.

#ThisIsOurPolio #RSV #Strep #Flu #LongCovidKids #CovidIsNotOver #BringBackMasks

themaskerscomic, to random
@themaskerscomic@forall.social avatar

HICPAC November 2023 Meeting:
Public has until midnight EST Nov 6th to submit a 1 page written comment to HICPAC bc at: HICPAC@CDC.GOV (include name, affiliation, city/state) to be included in their meeting minutes.

A Backgrounder from me on the HICPAC meeting that took place on Nov 2-3rd, and my written public comment can be viewed at

https://docs.google.com/document/d/1UNAgd-sZ-6SAVWzBl_R5X6YOs9UKCCcwgd-topIBhoQ/edit?usp=drivesdk

Please write a comment, together we are stronger!

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