adelinej

britt, 4 months ago to random

TW: medical stuff, meds, anxiety

So… today is the first dose of my new med for Rheumatoid Arthritis (seropositive).

I’m nervous. This means that moving forward my immune system will be even more fragile. I’ll basically be on a weekly low dose chemo drug and … wait … to see if it helps.

I’m not asking for sympathies or anything like that - I simply want to document my journey and show that just because you’re young and ‘look’ healthy —- it doesn’t mean you’re healthy. #InvisibleDisability

adelinej, 4 months ago to Autism

"Verbal "means "related to words," so "nonverbal" suggests that we don't have any words or any language.
This is untrue, and this assumption has kept us nonspeakers trapped by low expectations from others.

It is more accurate to say "nonspeaking" because our disability affects our ability to speak reliably as a form of communication, even though we have words in our brains and can express them in other ways."

#NonSpeaking #ActuallyAutistic #autism

To read more:

https://dannywithwords.com/about/

NatureMC, 4 months ago to random

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NatureMC, 4 months ago to random

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adelinej, 4 months ago to ontario

Home Care Services just left, it was completely useless 13 days after the surgery. But I prefer to put emphasis on the amazing health workers at the hospital who took and continue to take care of me since my mastectomy and the complication. I can ask or tell them anything, they are always here for me!

I thank them, especially bc I’m alone here with my husband to face everything. Don’t hesitate to thank them, it makes so much impact from my own experience!

#Ontario #Ottawa #ActuallyAutistic

adelinej, 4 months ago to random

Dear #ActuallyAutistic how do you stop, if you can do it, thinking and/or playing again and again in your head the conversations you had wondering what you should have said or not? What did this answer or question means? Because it’s exhausting. I’m not sure if it’s only an autistic thing? Question also for #AuDHD (being both).

*** EDIT: Being exhausted with a tiny focus capacity right now, it’s very difficult to no ruminate past conversations.

umzidiu, 4 months ago to random French

La CAQ.

#NonBinarité #2SLGBTQ

https://ici.radio-canada.ca/nouvelle/2041349/marqueur-de-sexe-x-permis-de-conduire-saaq-prete-gouvernement-legault-empeche-identite-de-genre

adelinej, 5 months ago to random

Talked to a psychotherapist for the first ime today. She's ADHD, she has several autistic patients and she seems to have pretty updated knowledge about autism. And she speaks French and she's not very keen of CBT! I'm happy and relieved! #ActuallyAutistic

britt, 5 months ago (edited 5 months ago) to languagelearning

I’m looking for new, preferably free/low cost, ways to help me continue learning German.

I’ve been at it casually over the last year and want to continue learning more.

I’m ADHD and have limited cognitive and physical energy due to some long covid stuff, so if you do recommend something please keep that in mind. Thank you! 🤗

#LanguageLearning

(Wow! Thanks for the boosts everyone! :acnh_flourish: )

anomaluridae, 5 months ago to trans French

Est-ce qu'il y a des autistes #trans #nonbinaire #genderfluid #agenre etc. qui sont intéressées par un Groupe de paroles #autiste en visio ?

Pas d'obligation de mettre la caméra ni de parler, il y a un chat pour celleux qui préfèrent écrire.

Groupe réservé aux autistes queer, avec un diag officiel ou un auto diag validé par la communauté autistique.

(Je suis #actuallyAutisticFr et pas vraiment queer mais loin de stéréotypes du genre, je me propose en tant qu'animatrice)

Contact par DM

adelinej, 5 months ago to random French

Je croyais que j’étais fainéante » : l’invisible combat quotidien des femmes autistes

« bien qu’un lien fort entre autisme et fonctionnement exécutif soit documenté depuis les années 90, il est absent de la liste des symptômes […] et n’est pas très connu du grand public. Les professeurs et thérapeutes n’assimilent pas la difficulté à accomplir les tâches de la vie quotidienne au TSA. Arriver constamment en retard n’alerte personne »

#ActuallyAutisticFr #autisme

https://femmesautistesfrancophones.com/2018/01/08/je-croyais-que-jetais-faineante-linvisible-combat-quotidien-des-femmes-autistes/

adelinej, 5 months ago to random

What do you think of that dear #ActuallyAutistic ?

A family member doesn't want to go on FB anymore (simply bc she lost interest in it) to read me while I communicate there with all my network. So, she asks me to send her news by email.

It doesn't seem to be a big deal but I have a limited amount of spoons currently and I'm working to put in place limits to cake care of myself. Is this too much?

(if you answer in FR please change the language of your comment for the translation tool)

hannu_ikonen, 5 months ago to accessibility

People realize the #AltText is for visually impaired Fedi members right?

Not clout, not virtue signaling, not to accuse people who add missed alt text of passive aggression. Not to seem superior.

ITS FOR. #Accessibility

Jesus fucking christ what an ableist shitty take.

Stop excluding the disabled, or dont, idc, just shut the fuck up about it being "passive aggressive" if someone adds AltText in a reply.

Narcissists in their small self-centered world.

#Ableism #Disability #fediverse

adelinej, 5 months ago to random

Have to be at the hospital tomorrow morning at 5.45 for the exams prior to the mastectomy. The night is going to be short.

1/2

#ActuallyAutistic #cancer

adelinej, 5 months ago to random French

Intéressante lecture sur les distorsions et autres raccourcis.

« Les jeunes ne veulent plus travailler »

« Dans une entrevue à une radio néo-zélandaise au printemps dernier, Paul Fairie racontait avoir été intrigué par cette phrase qu’il entendait souvent autour de lui. « J’ai commencé à faire des recherches dans les archives. J’ai trouvé des mentions, et je n’en étais pas surpris. Mais ce qui m’a surpris, c’est à quel point ces mentions remontaient loin ! »

https://www.lapresse.ca/dialogue/2024-01-03/les-jeunes-ne-veulent-plus-travailler.php

adelinej, 5 months ago to random French

Par @Autisme Soutien sur FB

« Trop souvent, les a/Autistes prennent des résolutions (peu réalistes !) à partir d'attentes définies par des allistes (des personnes non-autistes). Et si nous tentions d'être un peu plus nous-même en 2024? »

(Alt text dans l'image)

#ActuallyAutisticFR #autisme

adelinej, 5 months ago to random

@pathfinder I wish you a safe and not too exhausting shift and a resting and well deserved day after it. ❤️

adelinej, 5 months ago to random

I stopped taking the antidepressant that I had been taking again for about 10 days on the advice of my doctor to try to manage my anxiety related to my cancer diagnosis and I feel better. I had already started by reducing the suggested dose given the side effects, also bc the pharmacist had warned me of a possible interaction with another medication. I’ve also done research on the use of antidepressants for autistic people and the results are quite mixed so no more AD for me.

#ActuallyAutistic

adelinej, 5 months ago to random French

English in the comments.

Je viens de passer deux heures à envoyer et à recevoir des courriels pour le nouveau cours que je donne à partir du 2 janvier. J’adore mon métier et la nouveauté de ce nouveau cours avec mon TDAH, mais le changement est aussi difficile à gérer bien sûr étant autiste. Et il reste pas mal d’inconnus, mais c’est le jeu!

#ActuallyAutisticFr