🌟Stunning video by @PeteJudo
on the PACE trial
'This $8 Million Medical Trial is a Joke'
⚡Worst medical trial in modern history
⚡Worst in its bizarre practices
⚡Worst in potentially fraudulent results
⚡Worst in potential harm to patients
Links to:
"Australians Abandoned by Healthcare, Sentenced to “Living Death”: Outdated health guidelines and medical fallacies have left thousands of patients neglected and marginalised."
Extract from comments by Dr Binita Kane in this popular Guardian article today:
"‘I could bench-press 100kg. Now, I can’t walk’: Lucy’s life with #longCovid ."
"Before the pandemic, Lucy Keighley ran a gym, worked as a personal trainer and went on gruelling, exhilarating runs. But after three and a half years of illness, she isn’t sure she will ever recover"
ME Research UK is delighted to announce that we have awarded funding to Prof. François Jérôme Authier and colleagues for a new study assessing neurocognitive impairment in people with ME/CFS. https://bit.ly/3yNR3Uq
ME Research UK:
Our monthly e-newsletter keeps supporters up-to-date with ME Research UK's activities and research commentary. View May’s e-newsletter online ( https://bit.ly/3VlK91H ) and sign up today - https://rb.gy/0seeyj
Read the latest (US) National Institute of Neurological Disorders and Stroke [NINDS] Director’s Message from Dr. Walter Koroshetz: Advancing Research on ME/CFS.
A thread for sixteen #MECFS, #LongCovid and related research papers from w/c 27th May 2024.
Links are to our forum discussion threads, where abstracts, links to paper, analysis and discussion can be found. Inclusion does not equal recommendation.
Applications for access to DecodeME data invited.
"Our ME/CFS data set includes both phenotype and genotype data from thousands of participants, who have consented to us sharing their data on a de-identified basis. (contd)”
URGENT, DUE TODAY! please help Evel! xen is #Indigenous, #trans, #disabled, exhausted, and has a family to support. xen is fundraising for their monthly bills and housing.
I constantly see things like ''if you're not going to protests for this issue, you're part of the problem'' or ''don't call yourself an ally if you don't do XYZ''.
Like, I can barely get out of bed on a good day, the best I can do is share posts on social media, if that's not ''good enough'' for you go fuck yourself.
This is from posting pretty much solely on #MECFS , #LongCovid and related conditions and to a lesser extent chronic illness in general, which shows it is possible to build up followings on them, in case people either gave up on them or never tried.
#FollowFriday I recommend @IrishMECFSAssociation if you are interested in studies and #research about #LongCovid#MECFS etc. They provide international informations.
So my pain level has hit 9, and I stayed there for the past two hours. and my sweet child is pissed and complaining that I am "acting like a whining little bitch"...
The authors emphasise orthostatic changes in cerebral blood flow, electrocortical activity, heart rate variability, or oxygen extraction, among other physiological changes, can occur in the presence of a completely normal blood pressure or heart rate response on head-up tilt table testing