tomkindlon, to mecfs
@tomkindlon@disabled.social avatar
janetlogan, to LGBT
@janetlogan@mas.to avatar

Pride 2024

"I attended the local Pride celebration on Saturday, 1-June-2024. It was my first Pride since 2012, back in Houston." (continued at link)

https://janetannelogan.wordpress.com/2024/06/04/pride-2024/

#Fibro #Fibromyalgia #spoonie #LGBT #LGBTCommunity #Pride2024 #Trans #TransJoy #Transgender

@spoonies

lia_pas, to mecfs
@lia_pas@vis.social avatar

Catch the premiere of Opera Mariposa’s last online musical performance for and ! Join me NOW for a beautiful piano improvisation, and mark the close of an incredible May Awareness Month for , and other chronic neuro-immune diseases. https://www.youtube.com/watch?v=47ADrkevWNQ

tomkindlon, to bluesky
@tomkindlon@disabled.social avatar

In case of interest, I’ve recently passed 1000 followers on:

This is from posting pretty much solely on #MECFS , #LongCovid and related conditions and to a lesser extent chronic illness in general, which shows it is possible to build up followings on them, in case people either gave up on them or never tried.

@longcovid @mecfs

KitMuse,
@KitMuse@eponaauthor.social avatar

@tomkindlon @longcovid @mecfs As someone with #fibromyalgia I find that we're mostly forgotten in the chronic illness community. While I would love to connect more, I have stopped talking about it because it's considered the "hysteria" of the modern era. I have some unique theories on what caused mine. But there is a much larger community around some illnesses than others.

FiStitchWitch, to martialartsmemes
@FiStitchWitch@mstdn.social avatar

I am going to adopt this as my new pain scale!

wolfsbruder, to mecfs
@wolfsbruder@babka.social avatar

So my pain level has hit 9, and I stayed there for the past two hours. and my sweet child is pissed and complaining that I am "acting like a whining little bitch"...

#fibromyalgia #mecfs #ChronicPain

tomkindlon, to fibromyalgia
@tomkindlon@disabled.social avatar
sky, to KindActions
@sky@cyberpunk.lol avatar

oh goddess no

they cut off my water

I'm about $350 behind

it has to be paid for them to cut the water back on

please, if anyone can help me get my water back

please

I'm a disabled non-binary person (ADHD and bipolar), my partners are both disabled as well (anxiety and depression, as well as my wife having fibromyalgia)

I'm working as much as I can, but my job doesn't pay a living wage

https://www.paypal.com/paypalme/tsbarnes

#mutualaid #MutualAidRequest #transmutualaid #transcrowdfund #help #bills #water #disabled #fibromyalgia #autism #adhd

ChronicIllnessHumor, to mecfs
@ChronicIllnessHumor@mastodon.social avatar
tomkindlon, to mecfs
@tomkindlon@disabled.social avatar
tomkindlon,
@tomkindlon@disabled.social avatar

2/

In this study, having previously received an functional somatic syndrome diagnosis such as CFS was associated with female sex and poor health-related quality of life. No association was found for health anxiety, kinesiophobia and physical activity.

@mecfs @fibromyalgia @ibs #mecfs #cfs #fibromyalgia #ibs

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar
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