BTW #COVID19 delayed my #chemo, so we cancelled our annual Dim Sum shenanigans with friends.
i did go out the other day, but TBH am even more paranoid about any kind of infection, #flu#theCold whatever since ending in the emergency room.
so even though my sons are here, it's been a very #sociallyDistant holiday season since turkey day; but my chosen family understands and that makes me happy.
today was the first time i went out to a food market in weeks.
crowding wasn't that bad but, JFC #COVID19#fatigue is real. i was just getting the hang of managing my #cancer#chemo fatigue. now this has made it worse.
I've been hard misgendered more in the past week than I have in a long time. I think it's because my #chemo hair is long enough and unruly enough that it's gone from "hip dyke" to "eccentric man".
That, and bc I've basically given up on all that voice work I did, bc fuck gendered voice expectations.
Y’ALL
but for the allergic reaction to that lotion, today is another #chemo#fuckCancer win! no acid reflux, no stomach pains, no running to the bathroom a kabillion times a day. I GOT THIS 🥳
#chemo has done a number on my stomach. at one point, i felt like i could breathe fire like a dragon. the reflux was so horrendous that it affected my whole gut & intestines, so i was going almost every 15, 30 minutes to the bathroom, even if i just drank water.
so my MD gave me a generic magical thing called Omeprazole DR. today i finally took it and... i feel weird: it's the first time in forever i have not been in any stomach related pain.
they are high in inulin, which stabilizes blood sugar & a source of prebiotics which i need to heal my IBS ravaged gut flora which is now under attack by #chemo
what will it take for Americans to treat #HealthCare as a Human Right and not a commodity?
someone cancelled my #chemo and didn't think to tell me. what's worse? the hospital doesn't have a protocol for dealing with these kinds of screw ups beyond a 'sorry.'
it's not the in-take clerk's fault that i had to demand they pay for my ride back home because i cannot take mass transit as a #cancer patient. it's the job of the administration to foresee these errors and have a contingency plan. /1
Has anyone got any chemo survival tips? I've got my notebook and several pens, my puzzle book, a bottle of water and an extra jumper, and a cool cap. What else do I need? Trying to turn this into a positive experience. #breastcancer#chemo
When my hair fell out from #chemo, I packed away all my hair care products and accessories. Two years later most have been recalled to service, but I couldn't find the hair-ties! Hundreds of them, huddled together in a too-secure location, while Mr Willoughby and I fought for custody of the two hair-ties and one head-band I'd found in the car.
Clearing out some shelves this week ... miracle! Hair-tie stash unlocked! My babies!
It’s stories like this that I make sure to show my spouse
Lucky he’s busy w/work & otherwise obsessed w/soccer & sports news, b/c if he watched the trash I masochistically subject myself to occasionally b/c need a break from too serious books I insist on listening to… don’t know how onboard he’d be continuing caution b/c the cognitive dissonance breaks my🧠sometimes
Many blame #mRNA for everything & I’m not a fan, but it’s not the reason for☠️☠️
Been noticing on #msnbc#DeadlineWhiteHouse#joyreid some of the highly intelligent guests sound not articulate & there’s word mishaps & jumbling in general
Today show had an employee speaking about #chemo in tears & the hosts were like, oh we want to hug you but we know we can’t while sitting 2 feet away
Getting #chemo left me w/ #ChemoBrain. Very often, specific words feel elusive, like they're in my mind but I can't grab them. I have to re-read sentences for comprehension.
Others dismiss my symptoms as typical of aging, but I'm in my 40s, far from elderly.
The #BrainFog of #LongCovid reminds me of chemo brain. Now if I mention chemo brain, others say, "Oh yes, I have that too, we're just getting older!"
Somehow they've normalized cognitive decline & don't consider it might be long covid. 🤷🏻♀️
am taking my friend to the hospital tomorrow to get their scan results after three months of #chemo and frankly I'm in a worse headstate than they are 😬 the anticipatory tension is :skellysplode: