tomkindlon, to coronavirus
@tomkindlon@disabled.social avatar

(pay wall)
"Parents of children with #longCovid claim they have been accused of faking or exaggerating their child’s illness, leading to social services’ involvement and... court cases and the threat of the child’s removal from the home."

https://inews.co.uk/news/parents-children-long-covid-accused-making-up-3034629

@longcovid
#PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC #COVIDBrain
@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #SARSCoV2 @novid #novid #CovidIsNotOver
#longCovidKids #LCKids

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar
tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

#LongCOVID ‘indistinguishable’ from other post-viral syndromes a year after infection
https://www.eurekalert.org/news-releases/1037611

I think diagnoses like #LC & #MECFS are important for those ill after an infection to help adapt to the impairments, not get worse from pushing/having to push, etc

1/

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #CFS #PwME @longcovid
#PwLC #postcovid #postcovid19 #Covidlonghaulers #longhaulers #PASC
@covid19 #Coronavirus
#COVID19 #COVID #novid #COVIDBrain
@auscovid19

tomkindlon, to longcovid
@tomkindlon@disabled.social avatar

Developing effective strategies to optimize physical activity and cardiorespiratory fitness in the long Covid population- The need for caution and objective assessment

Free fulltext:
https://www.sciencedirect.com/science/article/pii/S0033062024000392

@longcovid
#LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC
#PESE #PEM

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar
tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

Newly announced upcoming clinical trial:

"A clinical trial to test if the fibrinolytic enzyme Lumbrokinase improves symptoms and mitigates blood clotting issues or platelet hyperactivation in patients with #LongCOVID, ME/CFS, & LongLyme disease."

https://polybio.org/projects/lumbrokinase-longcovid-me-cfs-clinical-trial/

@mecfs

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #TeamClots @longcovid
#PwLC #postcovid #postcovid19 #LC #PostCovidSyndrome #longhaulers #PASC
@covid19 #Coronavirus
#COVID19 #COVID #SARSCoV2

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

CrunchME @wecrunchme

We have made images of the charts from the analysis of PubMed publications data for & available in our Google Drive, for use by anyone in advocacy 📊

https://drive.google.com/drive/folders/1eqNK09SJM-eRl02sZ1fjrl1F8tp4wWQ8

PEM = post-exertional malaise

@mecfs
@longcovid

@covid19

CastlTrAstonDrs, to random
@CastlTrAstonDrs@med-mastodon.com avatar

A stalking & painful scenarios that emerging .There are about 6 Mil childrens in 🇺🇸 might be living with / at the moment …
https://publications.aap.org/pediatrics/article/doi/10.1542/peds.2023-062570/196606/Postacute-Sequelae-of-SARS-CoV-2-in-Children?autologincheck=redirected

tomkindlon, to longcovid
@tomkindlon@disabled.social avatar

New from Sweden:
Gut microbiota composition is altered in postural orthostatic tachycardia syndrome and post-acute COVID-19 syndrome

https://www.nature.com/articles/s41598-024-53784-9

#PosturalOrthostaticTachycardiaSyndrome #POTS @pots @longcovid
#LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC

tomkindlon, to Utah
@tomkindlon@disabled.social avatar

treatment trial recruiting in

A Randomized Double Blind Placebo Control Trial to Determine the Effects of Oxaloacetate on Improving Fatigue in Long COVID

Compensation: "Eligible participants will be compensated $50 for each in-person visit. At the end of the study, participants will be provided with a 45-day trial of oxaloacetate if they are interested"

https://batemanhornecenter.org/research/
@longcovid

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar
tomkindlon, to longcovid
@tomkindlon@disabled.social avatar

New US open-label study
Low-dose naltrexone and NAD+ for the treatment of patients with persistent fatigue symptoms after

Free fulltext:
https://www.sciencedirect.com/science/article/pii/S2666354624000115

@longcovid

tomkindlon, to cfs
@tomkindlon@disabled.social avatar

From ME Research UK

#LongCOVID & ME/CFS have overlapping symptoms, yet many studies overlook the proportion of individuals with long #COVID who meet ME/ #CFS criteria. Read more about current estimates of the proportion of individuals with long #COVID19 who meet #MECFS criteria:

https://www.meresearch.org.uk/estimating-me-cfs-prevalence-in-individuals-with-long-covid

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PwME @longcovid
#PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC #COVIDBrain @covid19

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar
tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

New from Canada:
Metabolomic and immune alterations in patients with

Abstract:
https://www.frontiersin.org/articles/10.3389/fimmu.2024.1341843/abstract

"Our results demonstrate that LC patients exhibit persistent metabolomic abnormalities 12 months after the acute disease"

"suggests sarcosine and serine supplementations might have potential therapeutic implications"

@longcovid
@mecfs

@covid19

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

Mitochondrial Dysfunction and Coenzyme Q10 Supplementation in Post-Viral Fatigue Syndrome: An Overview

Free fulltext:
https://www.mdpi.com/1422-0067/25/1/574

Note: The lead author "is medical adviser to Pharma Nord (UK) Ltd"

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC
@fibromyalgia
#Fibromyalgia #Fibrositis #Fibro #FMS #FM

1/

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar
tomkindlon, to disabled
@tomkindlon@disabled.social avatar
tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

UK questionnaire that is now open people who have been diagnosed with ME/CFS or long Covid

https://www.qualtrics.manchester.ac.uk/jfe/form/SV_6thFs23wnA95Lca

Takes a while to complete supposedly but you can complete it in stages.

Principal investigator has ME and it is funded by the MEA so Association

@mecfs

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE @longcovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC

tomkindlon, to covid19
@tomkindlon@disabled.social avatar

“we have demonstrated that there were no statistically significant differences in the retinal microvasculature of patients with #postCOVID19 syndrome compared to healthy cohorts. Furthermore, no significant structural differences were observed in the macular retinal nerve fibre layer (RNFL) & ganglion cell layer (GCL) of the study participants”

https://www.mdpi.com/2313-433X/9/11/234

@longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #PASC #postcovid @covid19
#COVID19 #COVID

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar
eeyam, to Health
@eeyam@med-mastodon.com avatar

Like a giant ICU: Philippine General Hospital sounds alarm on emergency room congestion.
Due to years of neglect plus possible surges of illnesses, emergency rooms and even ward rooms of public hospitals are usually like ICUs.
But then our government cuts the budget for health next year 🤷🏻‍♀️

https://news.abs-cbn.com/video/news/10/06/23/like-a-giant-icu-pgh-sounds-alarm-on-er-congestion

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

"Last Chance to Make History – the Huge Study is Closing Soon – and it Needs Your Help"

https://www.healthrising.org/blog/2023/10/05/decode_me-study-closing-soon/

Please help to get the word out either by liking and/or retooting this, or by highlighting the study in some other way

@mecfs
@longcovid

tomkindlon, to bluesky
@tomkindlon@disabled.social avatar
tomkindlon, to mecfs
@tomkindlon@disabled.social avatar
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