"To explore experiences of patients who have complex chronic conditions, such as #fibromyalgia & #chronicfatiguesyndrome, when they request medical assistance in dying (#MAID) in Canada"
From ME Research UK:
A recent review by researchers in the UK & Spain explores mitochondrial dysfunction & its link with post-viral syndromes such as #MECFS, #longCOVID & #fibromyalgia, including the potential benefits of coenzyme Q10 supplementation.
Today was a lot. I started with a doctor appt this morning, then met up with my submissive for a quick session where I introduced him to a hitachi for the first time (amusing af!), and then had my waxing appointment.
Tomorrow I have my hair appointment before running my housemate around for some errands, and then I have to pack.
Wednesday I head to Sydney at 7am, and Thursday I fly out at 9.30pm.. which will means numerous hours sitting on molded plastic chairs at the airport waiting for my flight. Then 24 hours later I land and finally get to hug Greg.
Another storm is coming in and I hurt everywhere. I feel like such a cliché- old lady who can predict weather from body pain. How fucking annoying. #fibromyalgia#fibroflare
I've watched the last two Indiana Jones movies today. Crystal Skull and Dial of Destiny. I enjoyed them both, even under the weather. Yes I am feeling poorly.
One of two possibilities. Either I have a cold, which coincidentally began about 12 hours after the RSV vaccine, or I am having side effects from said vaccine.
Honestly, even if it is from the vaccine, I'm still glad I got it. Vaccines are important, especially at my age. And, no, they don't cause #autism.
I've had intermittent low grade fever, fatigue, stuffy head, and occasional cough. The fatigue could be #fibromyalgia , but the rest is definitely not.
I'm treating with generic Alka Seltzer Cold and Flu. That and bed rest. No big plans for #NYE are being ruined. Not to worry.
It’s been another busy day today. Went to clinic for labs. That took way longer than it should have for middle of the week between holidays. Way too peoply too. My #ActuallyAutistic self could have done without that.
The phlebotomist was skilled and didn’t cause overmuch pain. That, after commenting on how narrow my veins are. My #CPTSD could have done without that comment.
Came home in pain with back spasms coming and going. Sucks getting old.
I am just not controlling my #Fibromyalgia pain at the moment, especially in my shoulders/collarbones. This cold/bug isn't helping.
Trying to find more hope in this much pain is kinda like materia melding in #FFXIV: I have a 10% chance of finding a bit more and a 90% chance of destroying what little I had.
We should have known. It took a deadly pandemic to wake us all up.
This view of #ViralIllnesses and their potential long-term impacts may lead to research that will also help people with other little understood conditions, such as #ChronicFatigue syndrome and #fibromyalgia, which experts believe might be triggered by viral infections, Al-Aly said. #COVID
December 12th is always an emotional day for me. It's my late wife Barbara's birthday, and the #grief wells up and spills out.
Today was absolutely just such a day. And to top it off, my roommate went off on a rant about how my depth of feeling on that topic is wrong and unhealthy. Not her words. I cleaned it up.
I had a huge meltdown as a result. Now I'm exhausted, and in pain. I'm turning in for tonight. I hope.
Currently waiting on my cardiologist to review the CT results and suggest next steps. I'll probably be put on a statin, at a minimum. I do have some hardening of the arteries, as well as more significant hardening of the aortic valve.
All of which isn't great, but not immediately life-threatening either, so far as I can tell from the Internet. I'll update when the cardiologist gives me his take.
@kagan
Super big thank you for posting this. I know that a number of people have #fibromyalgia in my followers and amongst the writing has tags. The article has a lot that has changed since I last looked.
the findings also contradicted long-held perceptions that chronic fatigue syndrome is a rich white woman’s disease.
Yep. Doctors used it to once again discriminate again women! But now:
-> [The study shows] There was less of a gap between women and men than some previous studies suggested, and there was hardly any difference between white and Black people. The study also found that a higher percentage of poor people said they had it than affluent people.
So, there's the reason medicine ignored an important disease, and even in that group, I fell through the gaps. It's about time this gets taken seriously. #Brainfog and #chronicfatiguesyndrome are real and can affect anyone.
My throat felt better on Monday but then it was time for a #fibromyalgia flare. I slept almost all of yesterday. I feel a bit better today and much more awake so far. #health