please help Evel! xen is #Indigenous, #trans, #disabled, exhausted, and has a family to support. xen is fundraising for their monthly bills and housing. anything helps!
Recording when ME/CFS Research Roadmap was discussed during the National Advisory Neurological Disorders and Stroke (NANDS) Council meeting on Wed, May 15.
"According to a Centers for Disease Control (CDC) report from September of last year, around 18 million adults reported dealing with long COVID as of 2022."
please help Evel! xen is #Indigenous, #trans, #disabled, exhausted, and has a family to support. xen is fundraising for their monthly bills and housing. anything helps!
Article about a demonstration for specialist ME services in Northern Ireland. Interviews with Joan McParland, founder of Hope 4 ME and Fibo NI, Rosie Pigeon and Rebecca Logan
“Podcast interview with Eliza Charley. Highly informed and very well articulated discussion of the experiences of medical, societal and self-gaslighting in the context of medically-induced stigma”
please help Evel! xen is #Indigenous, #trans, #disabled, exhausted, and has a family to support. xen is fundraising for their monthly bills and housing. anything helps!
LMNT’s electrolyte sparking waters are my new fav, like many with who are bulk electrolyte salt subscribers they sent me a free 8-pack, Black Cherry Lime is the best IMO, tastes like Sonic’s famous cherry limeades, unpaid recommendation! What’s yours? 🍒🍋🟩
Trying to balance weight from a necessary high sodium #POTS#dysautonomia diet (with lymphedema from #EDS#MECFS, and disability exercise barriers) is tough
I may experiment with more sparkling water and less salts, see where it gets me!
"Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported Chronic Fatigue Syndrome in British Columbia, Canada, and their health-related quality of life"
"We are THRILLED to share the rolling successes of our 'Teach ME Treat ME' campaign with you, as we report back on the amazing medical education events that have taken place so far – with many more to come in the upcoming months!"
Article has lots more details along with reports of other Millions Missing events! 😁
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An open letter to Anna Gregorowski, chair of BACME (British Association of Clinicians in ME/CFS), from Members of the ME community, facilitated by the Chronic Collaboration.