@ahimsa_pdx@disabled.social
@ahimsa_pdx@disabled.social avatar

ahimsa_pdx

@ahimsa_pdx@disabled.social

Vegetarian, book lover📚 Living with ME/CFS and Dysautonomia since 1990 ♿️ She/Her

Please use #AltText on images/GIFs❤️

Yes, I'd love to see a photo of your cat😻

Avatar photo: Old photo of my cat, tabby with white chest & paws. Banner photo: Trees in a park with green leaves.

Just my posts, no boosts = https://justmytoots.com/@ahimsa_pdx?public_only=true

#MEcfs #PwME #Dysautonomia #POTS #LongCovid #Disability #Accessibility

This profile is from a federated server and may be incomplete. Browse more on the original instance.

moxxi, to Dog
@moxxi@mastodon.social avatar

Happy International Corgi Day !

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@moxxi
Aww, she looks like she's enjoying herself! 😁

KydiaMusic, to animals
@KydiaMusic@mastodon.social avatar

Toots m’Doots

Happy Dootsday, and Happy Toe Bean Tuesday!

Doots’ toe beans are coffee beans, which explains why he has so much energy for Zoomies and gusto in his complaints to Management.

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@KydiaMusic Love those coffee colored toe beans! 😻

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

BMJ e-letter:
"Why I’d rather have a well-researched and well-informed doctor"

Free:
https://www.bmj.com/content/376/bmj.n3102/rr-0

"the NHS simply does not offer any kind of useful care" for ME and []


@mecfs
@longcovid

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@tomkindlon

Thanks for the link, Tom. We definitely need more doctor education!

Anyone reading this can share the Mayo ME/CFS CME (continuing medical education) with their doctor(s):

https://millionsmissing.meaction.net/treatme/

Half of Long Covid patients meet ME/CFS diagnosis.

The link above is for folks in the USA, but also did outreach in May in some other countries:

https://www.meaction.net/2024/05/17/teachmetreatme-celebrating-an-impactful-campaign/

@mecfs @longcovid

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

Short quote from the letter linked in Tom's post:

"I have sat through countless GP appointments where I have had to explain the basics of Post Exertional Malaise [PEM], the cardinal symptom of ME, before going on to discuss treatment."

I've had similar doctor visits.

It's frightening that so many doctors know so little about ME/CFS.

@mecfs @longcovid

ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar

Here's the News in Brief summary from the Science for ME forum, for week starting May 27:

https://www.s4me.info/threads/news-in-brief-may-2024.38393/#post-535789

This summary includes news articles, videos, research, advocacy, coming events, and more.

@mecfs @longcovid

#MEcfs #LongCovid #ChronicIllness #MyalgicEncephalomyelitis #Science4ME

ahimsa_pdx, (edited ) to Dogs
@ahimsa_pdx@disabled.social avatar

Sharing what's left my Washington Post gift links before they expire! 😁

First up, an article about a viral challenge involving dogs

"Dogs are doing the viral ‘paws in’ challenge. Here’s why."

https://wapo.st/4e2giCC

(Note: click on link above not preview image to get gift link)

1/5

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

"Her brother got an associate’s degree at 11. She graduated even younger."

https://wapo.st/4c5lNPr

"Athena Elling, 11, became the youngest student to graduate from Irvine Valley College a year after her brother, Tycho, set the record. "

2/5

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

"Teen made app for peers who are anxious, lonely: ‘Stay hungry, stay foolish’ "

https://wapo.st/3Vjxyfn

“I wanted to create something that was by a teen for teens,” said Vaishnavi Kumbala, 16.

3/5

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

"A teen dropped out of high school during WWII. Now 99, she just graduated."

https://wapo.st/3V6ozN9

"Eleanor Monninger was one class short of graduating when her brother went to fight in World War II and her father needed her help running the family farm."

4/5

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

"She finished chemo then got a medical degree: ‘The dream is real now’ "

https://wapo.st/3X472b1

"Keri Cronin has her sights on her next goal: becoming an oncologist to help other cancer patients like herself."

5/5

tomkindlon, to bluesky
@tomkindlon@disabled.social avatar

In case of interest, I’ve recently passed 1000 followers on:

This is from posting pretty much solely on , and related conditions and to a lesser extent chronic illness in general, which shows it is possible to build up followings on them, in case people either gave up on them or never tried.

@longcovid @mecfs

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@JohanDiederik

Getting a larger number of followers is helpful when you're trying to provide information about an illness (ME/CFS, myalgic encephalomyelitis / chronic fatigue syndrome) that affects millions of people but is still not very well known. ME/CFS is often is not even taught in medical schools.

An #MEAction advocacy campaign called "Teach M.E., Treat M.E." is trying to correct this problem:

https://www.meaction.net/2024/05/17/teachmetreatme-celebrating-an-impactful-campaign/

@tomkindlon

ahimsa_pdx, to random
@ahimsa_pdx@disabled.social avatar

From The Washington Post:

"IRS Direct File is here to stay. All 50 states are invited.

The Biden administration hopes to eventually make the free tax filing site an option for most Americans."

= https://wapo.st/3KmYkNR

"Republicans have criticized it as a costly and unnecessary government alternative to private-sector offerings… "

But of course they did 🙄

1/2

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

More quotes:

"This tax season, more than 140,000 taxpayers in 12 eligible states made use of Direct File — which allows users to submit simple tax returns directly to the government."

"Senate Finance Committee chair Ron Wyden (D-Ore.) called the expansion 'tremendous news for taxpayers all over the country who are tired of getting ripped off by the big tax prep companies …' "

= https://wapo.st/3KmYkNR

2/2

ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar

From The Sick Times:

" ‘They bungled it:’ NIH documents reveal how $1.6 billion Long Covid initiative has failed so far to meet its goals "

https://thesicktimes.org/2024/05/31/they-bungled-it-nih-documents-reveal-how-1-6-billion-long-covid-initiative-has-failed-so-far-to-meet-its-goals/

This is a long article, an in-depth analysis of the NIH RECOVER research project.

There's a lot of data to absorb. I have not read the whole thing myself yet.

@longcovid @mecfs

#COVID #LongCovid #MEcfs #NIH #Research

ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar

"COVID can cause new health problems to appear years after infection, according to a study of more than 130,000 patients"

https://fortune.com/well/article/covid-cause-new-health-problems-years-after-infection/

"With more than 130,000 patients, the study is by far the largest so far to track the progress of the virus over a full three-year period."

@longcovid @mecfs

#Covid #Covid19 #LongCovid #PostCovid #MEcfs

KydiaMusic, to random
@KydiaMusic@mastodon.social avatar

I haven't had a drink in months since I am doing an elimination diet to figure out why I keep coughing up phlegm every morning. BUT

I MIGHT NEED TO HAVE A CELEBRATORY MARGARITA TONIGHT.

GIF of David Rose from the TV show Schitt's Creek saying "I feel like that needs to be celebrated."

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@KydiaMusic Cheers! 🍹

mcc, to random
@mcc@mastodon.social avatar

Is this a good time to bring up my deeply held belief that people should be allowed to vote in elections even if they are convicted felons

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@mcc Agreed! I think both Maine and Vermont allow voting while in prison.

Edit: I thought I should add a link with actual data since my comment was based on my very faulty memory:

https://ballotpedia.org/Voting_rights_for_people_convicted_of_a_felony

futurebird, to random
@futurebird@sauropods.win avatar

Someone in my building is BLASTING "New York New York"

Which is traditionally done after yankee games if they win in our building.

LOL.

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@futurebird

Love it! ❤️ Here are some new lyrics:

🎵 Trump was convicted there
Let's do that everywhere!
And so, thank you,
New York, New York! 🎵

Washington Post article (gift link) = https://wapo.st/3KoMJh8

(click on link above, not preview image below)

josh, (edited ) to random
@josh@josh.tel avatar

Hey folks! I'm looking for examples of elected officials and people running for office who have accounts on the fediverse.

Know of one? Please let me know! Boosts appreciated :boost_requested:

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@josh Since you're including accounts on threads I thought I'd mention that the web interface allows searches without being logged in (maybe app does, too, but I don't have the app)

I did a few quick searches and found these accounts. I'm sure someone with more time/energy could find more:

https://www.threads.net/@senjeffmerkley

https://www.threads.net/@amyklobuchar

https://www.threads.net/@sentedcruz

https://www.threads.net/@senossoff

ahimsa_pdx, to pdx
@ahimsa_pdx@disabled.social avatar

"Powell’s Books will sell off book backlog during 2-day warehouse sale next month"

https://www.oregonlive.com/business/2024/05/powells-books-will-sell-off-book-backlog-during-2-day-warehouse-sale-next-month.html

"The event will be held at the independent new and used book seller’s warehouse, located at 2720 N.W. 29th Ave., from 10 a.m. to 4 p.m. on June 1 and 2.

The book sale will feature a variety of genres, from literature to nonfiction and children’s books, at deep discounts…"

ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar

"In communities of color, long-covid patients are tired of being sick and neglected"

Gift link = https://wapo.st/3wSGcYO

"Health-care experts and medical studies have found that racist myths about Black people … coupled with physicians’ biases, mean Black patients are more likely to be seen as drug-seeking and described negatively in electronic medical records."

“Who gets diagnosed with Long Covid, it’s socially and economically skewed”

@longcovid @mecfs
#USpol #LongCovid #MEcfs #HealthCare

ahimsa_pdx, to news
@ahimsa_pdx@disabled.social avatar

I just noticed that the Washington Post now has an AI summary tool for some news articles. Not sure whether this tool is only for subscribers or shown to everyone.

Supposedly this summary is "AI-generated, newsroom reviewed" which I guess means that humans do verify that it's accurate?

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

Here's a link to the article that goes with that summary, in case it helps:

https://www.washingtonpost.com/wellness/2024/05/28/in-person-friendships-health-benefits/

ricci, to random
@ricci@discuss.systems avatar

Hey, with people in the news getting sentenced to prison, facing the possibility of prison time, etc., just a reminder: it is not desirable, nor funny, that violence in prison (including sexual violence), be a part of someone's punishment. Even people you really, really do not like who have done really super bad things. It is to the United State's shame that violence in prison is part of our carceral system, and we should not celebrate it, ever. We should seek to eliminate it.

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@ricci It's absolutely disgusting when these jokes are made.

I have not seen any yet but whenever I see them it's an instant block.

(I just realized this was posted March 28, not May 28. My comment still stands, but I didn't realize this was an older post when I saw it just now.)

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@ricci Yes, absolutely relevant for today.

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