rdnielsen, to Health
@rdnielsen@floss.social avatar

The impact of long Covid on Social Security Disability Insurance and Supplemental Security Income in the U.S. has been minimal, but that may be changing:

https://www.statnews.com/2024/06/06/long-covid-disability-national-academy-of-sciences/

CastlTrAstonDrs, to random
@CastlTrAstonDrs@med-mastodon.com avatar

Prevalence of by race & ethnicity. These findings support @CDC’s definition that “represents many potentially overlapping entities, likely with different biological causes & different sets of risk factors & outcomes.

https://jamanetwork.com/journals/jama/fullarticle/2819957?utm_source=twitter&utm_campaign=content-shareicons&utm_content=article_engagement&utm_medium=social&utm_term=060724

JetlagJen, to mecfs
@JetlagJen@geekdom.social avatar

So, #electricBike people, I have a question. It's more about electric #trikes for people with #MECFS #LongCovid #Fatigue really.

How can I work out how hard it will be to get up a hill? Is there a formula, a rule of thumb? Like pedal assist makes a 6% feel like a 3% or anything like that?

I'd like some idea of how much it will help me get out and about locally before I spend thousands. But I don't know how to know? There's no showroom or hire anywhere near, so test ride is not an option.

aby, to disability
@aby@aus.social avatar

“Some elective surgeries have been paused at public hospitals across South Australia. Hundreds of hospital staff are off sick with COVID-19.”

https://x.com/7NewsAdelaide/status/1796096277312418265?t=wz1TFcw2Q3ypLYAweFecaQ&s=09

h/t to Violet Blue on @Patreon for their [ - https://www.patreon.com/violetblue?utm_campaign=creatorshare_fan]

bassjobsen, to random Dutch

"But people with mild illness can also develop #LongCOVID — and because there are so many more of them, they make up the bulk of those with long COVID, the report found."

There is no known cure for long COVID, according to the report. Recovery can vary dramatically from person to person. Long COVID “appears to be a chronic illness,” the report found, “with few patients achieving full remission.”

https://www.latimes.com/science/story/2024-06-05/positive-covid-test-not-needed-for-long-covid-diagnosis

MEActNOW, to random
@MEActNOW@mastodon.social avatar

💔 “increased risk of heart attacks, strokes and heart rhythm disturbances.. the severity of the infection doesn’t seem to make a difference....The big surprise is how much this can affect younger people.”
#Covid #LongCovid

https://www.heartandstroke.ca/articles/coronavirus-heart-disease-and-stroke

ChristosArgyrop, to random
@ChristosArgyrop@mastodon.social avatar

“The effects of repeatedly getting this throughout our lives is going to be much more significant than people are thinking.”
“most governments don’t want to think about long covid and much less long covid and cancer. It cost them so much to deal with covid. So there is very little funding for the long-term effects of the virus”
“I don’t think that’s a wise choice.”
https://www.washingtonpost.com/health/2024/06/06/covid-cancer-increase-link/

Time to tap the head

bentomn, (edited ) to random
@bentomn@hachyderm.io avatar

“We conclude that long Covid is a real condition,” committee chair Paul Volberding, a professor emeritus of medicine at UCSF, said in a video conference Wednesday. “People suffering from it have to be listened to and have to be believed and deserve the best access possible to the management strategies.”

Report captures long Covid’s disabling effects and policy challenges
https://www.statnews.com/2024/06/06/long-covid-disability-national-academy-of-sciences/

bentomn, (edited )
@bentomn@hachyderm.io avatar

For those interested I can recommend the recorded webinar.

The committee held a webinar to introduce the 250 page report for those with limited time.

Edit: link may be broken after 24 hours, sorry

Webinar - speakers & slides 30min, Q&A 30min
https://www.nationalacademies.org/event/42

bentomn, (edited )
@bentomn@hachyderm.io avatar

The National Academies 250 page report on Long Covid is below, if the webinar doesn’t work out.

It’s a study group consensus document assembled over two years.

I find it reasonably easy to skim to find areas of interest.

It was sponsored by the US Social Security Administration.

https://doi.org/10.17226/27756

bentomn, (edited )
@bentomn@hachyderm.io avatar

If you want to look at a summary of research directions, this Jan 2023 paper by Davis, McCorkell, Vogel, & Topol captured some of the ongoing work. It’s another nice collection of footnotes for specific topics.

#LongCovid

https://www.nature.com/articles/s41579-022-00846-2

bentomn, (edited ) to random
@bentomn@hachyderm.io avatar

Op-comic: The long, long road of long COVID - Los Angeles Times #LongCovid
https://www.latimes.com/opinion/story/2024-06-06/op-comic-long-covid

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar
voteoutcovid, to uk
@voteoutcovid@mastodon.me.uk avatar

#Introduction Post

Hi, we're Vote Out Covid! We know that #CovidIsntOver and we want #UK #GeneralElection candidates to sign up to three low-cost, non-intrusive health pledges to help reduce risk and harms from #LongCovid and other conditions.

We're still getting set up but please do follow us and boost this toot to encourage others to join in. We'll let you know here when our campaign fully launches, hopefully by 10th June.

#ukpol #Covid #covid19

DenisCOVIDinfoguy, to auscovid19
@DenisCOVIDinfoguy@aus.social avatar

New report: More than 200 symptoms tied to long COVID.

"While there is evidence that many people with Long COVID symptoms have improved by 12 months, data beyond that time frame is limited but suggestive that recovery might plateau or progress at a slower rate"

@auscovid19

Source: https://www.cidrap.umn.edu/covid-19/report-more-200-symptoms-tied-long-covid

Press release: https://www.nationalacademies.org/news/2024/06/new-report-reviews-evidence-on-long-covid-diagnosis-risk-symptoms-and-functional-impact-for-patients

Toastie, to LGBTQ
@Toastie@journa.host avatar

"COVID and long COVID are not HIV/AIDS, but our response to both viruses has been to bury them, to cover disabled and high-risk people with dirt. There is silence, skepticism and denial as many of us have become immunocompromised, as thousands have died of complications of long COVID, as millions have died of COVID."

Beautiful essay by columnist Miles W. Griffis reflecting on AIDS, , and the work of artist David Wojnarowicz.

https://www.hcn.org/issues/56-6/how-to-live-and-die-with-long-covid/

rchusid, to random
@rchusid@med-mastodon.com avatar
Hedgewizard, to random
@Hedgewizard@beige.party avatar

Government messaging - or the lack of it - is telling you that covid isn't worth worrying about any more.

If you've come to think that way, you need to read this.

https://www.ineteconomics.org/perspectives/blog/from-long-covid-odds-to-lost-iq-points-ongoing-threats-you-dont-know-about#:~:text=A%20recent%20study%20in%20the,extra%202%20points%20in%20IQ

#COVID #LongCovid #CovidIsNotOver #WearAMask

timbray, to random
@timbray@cosocial.ca avatar

A white-hot extended burst of rage at the health sector’s reckless obliviousness to the persistence of COVID and its continuing dire impact on public health. Intense and impolite but important: https://www.thegauntlet.news/p/hospitals-are-killing-patients-because

#covid #LongCovid

LLS, to mecfs
@LLS@wandering.shop avatar

some days

ahimsa_pdx, (edited ) to mecfs
@ahimsa_pdx@disabled.social avatar

#MEAction has extended the deadline for their Millions Missing 2024 fundraiser to June 21.

"We have finally crossed over 50%, so we need your help to finish out this fundraiser strong!"

Donation link:

https://www.meaction.net/millionsmissing-fundraiser-2024/?mc_cid=ebf9727656

Please donate if you can, but only if you are not struggling yourself! ❤️

1/2

@mecfs

#MEcfs #LongCovid #ChronicIllness #Fundraiser #Charity

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

" recognizes that everything seems to cost a little bit more these days...as it is now costing us a little bit more to provide the programming and resources needed for this community. If you have a few extra dollars to give, we would greatly appreciate it."

Full email here:

https://mailchi.mp/meaction/millionsmissing-fundraiser-extended

2/2

@mecfs

ASegar, to journalism
@ASegar@mastodon.social avatar

New Report Underscores the Seriousness of Long Covid by @nytimes

The National Academies said the condition could involve up to 200 symptoms, make it difficult for people to work and last for months or years.

[gift link] https://www.nytimes.com/2024/06/05/health/long-covid-symptoms-recovery.html?u2g=c&unlocked_article_code=1.xU0.ayVW.il373DAVxTcI&smid=url-share

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

Extract from comments by Dr Binita Kane in this popular Guardian article today:

"‘I could bench-press 100kg. Now, I can’t walk’: Lucy’s life with #longCovid ."
"Before the pandemic, Lucy Keighley ran a gym, worked as a personal trainer and went on gruelling, exhilarating runs. But after three and a half years of illness, she isn’t sure she will ever recover"

https://www.theguardian.com/society/article/2024/jun/05/i-could-bench-press-100kg-now-i-cant-walk-lucys-life-with-long-covid

@mecfs
#MEcfs #CFS #PwME
@longcovid
#PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PASC #COVIDBrain

ChiaraChiarel, to random French
@ChiaraChiarel@piaille.fr avatar

https://www.theguardian.com/society/article/2024/jun/05/i-could-bench-press-100kg-now-i-cant-walk-lucys-life-with-long-covid

Long article très émouvant, le journaliste a apparemment été sincèrement touché par le sujet.

Interview d'une malade de Covid long et d'un médecin

#LongCovid
#CovidIsNotOver

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