pcublogue, to random
@pcublogue@pkutalk.com avatar

jour 1, mon déjeuner (repas 1 de 2).

📌 Sandwich BLT (le « bacon » est de la noix de coco fumée)
📌 Frites de céleri rave
📌 Ketchup sans sucre céto

Moins de 4g de protéines (méthode simplifiée)
11g de glucides net
Excellent 😋

poconnor, to random
@poconnor@pkutalk.com avatar

I'm thinking about supplements, our special drink, medicine... What ever you call it!

I'm changing to a new type & wondering what affects your choice of supplement. Is it just the taste, or how easy it is to get, to take, to carry, etc.?

pcublogue, to random French
@pcublogue@pkutalk.com avatar

Bleuets 🫐
Bananes 🍌
Avocats 🥑
Lait d’amande
Sirop d’érable
20g de protéines de formule
Une bonne façon de commencer la journée
😋 💪🏻👌🏻
*
Blueberries 🫐
Bananas 🍌
Avocado 🥑
Almond milk
Maple syrup
20g of formula protein
A good way to start the day
😋 💪🏻👌🏻

poconnor, to random
@poconnor@pkutalk.com avatar

What is Large Neutral Amino Acid (LNAA) treatment?

is an additional treatment for which is used in certain European nations.

In my book, "Living with PKU," I discussed LNAA and you'll find an excerpt on my blog:
https://buff.ly/408pMWC

poconnor, to baking
@poconnor@pkutalk.com avatar

PKU-Friendly Chocolate, cherry & sour cream cupcakes incoming…

poconnor, to random
@poconnor@pkutalk.com avatar

Good morning @NSPKU Conference. Metabolic dietitian Suzanne Ford kicks us off with a look at the treasure trove of information on the NSPKU webpage.

the research page has open access to relevant studies, while the documents page is a rare resource of helpful information.

Plus, full page copies of the News & Views!

image/jpeg

pcublogue, to random French
@pcublogue@pkutalk.com avatar

Est-ce que la volonté est comme un muscle qu’on peut entraîner? J’ai besoin d’y croire! 😝

Il n’y a rien qui travaille ma volonté comme faire le petit déjeuner de ma fille EN PLUS d’être en train de jeûner. 💪🏻😅

pcublogue, to random French
@pcublogue@pkutalk.com avatar
poconnor, to random
@poconnor@pkutalk.com avatar
poconnor, to random
@poconnor@pkutalk.com avatar

TW: blood & needles

Tips for #PKU #BloodSpot

The #sapropterin trial meant daily #tests & I review different lancets & offer tips

TLDR: lancet has big effect on pain & healing as does choosing the site

https://pigpen.page/tips-for-blood-spots/

#LivingWithPKU #LowProtein #AdultPKU #PCU #PKUlife

pcublogue, to random
@pcublogue@pkutalk.com avatar

Dinner this evening: Vegetables overload and sweet potatoes 🍠

soheb, to random
@soheb@pkutalk.com avatar

A question to the PKU community:

What would you say to parents who have just discovered that their child has PKU?

#pku #phenylketonuria #parenting #parents #lowprotein #metabolic #phenylcetonurie #phenylalanine

pcublogue, to random French
@pcublogue@pkutalk.com avatar

Beau début de journée. ☀️
📌 6000 pas jusqu’à maintenant
📌 Musculation
📌 Jeûne de 14 heures
📌 40g de protéines de formules pour briser le jeûne

Tout ça avant 11:00!

Motivation, motivation 😛💪🏻

pcublogue, to random
@pcublogue@pkutalk.com avatar

, jour 1 (repas 2 de 2).

📌 Riz fri aux légumes (konjac)
📌 Salade verte avec huile d’olive, curcuma et câpres

1g de protéines (méthode simplifiée) 🙌🏼
8g de glucides net 😄

poconnor, to random
@poconnor@pkutalk.com avatar

Easy PKU lunch ideas: Raisin Scones
Tasty, fluffy, protein-free raisin scone recipe. Baking made eash with pictures!
For people on #LowProtein diets like #PKU, #Phenylketonuria.
https://buff.ly/461zFIi

pcublogue, to random French
@pcublogue@pkutalk.com avatar

Un de mes repas préférés, mais rapide et facile à faire! Préparez les pâtes, faites revenir les légumes dans le poêlon, ajoutez les pâtes, ajoutez la sauce et bam. C’est déjà fini.
*
One of my favorite meals, but quick and easy to make! Prepare the pasta, fry the vegetables in the skillet, add the pasta, add the sauce and bam. It's already over.

image/jpeg

poconnor, to random
@poconnor@pkutalk.com avatar

Easy #PKU Lunch ideas!
2g protein frm the new @Genius Ciabatta, filled with cucumber, pickle, & protein-free cheese (@Violife)

Ciabatta found @Ocado

#LivingWithPKU #AdultPKU #LowProtein

soheb, to random
@soheb@pkutalk.com avatar

I have done it!! I have made the perfect Mogo Chips!!

Mogo is basically Yuca/Cassava, and you can get pre-cut mogo chips (as seen here): https://www.sanjanafeasts.co.uk/2023/06/mogo-chips-yuca-fries-or-cassava-fries-bomb-sauce/

It's super simple to make, too!

  1. Boil frozen mogo chips for 15-20 mins until mogo chips are soft in the center (like potato, you got to poke them with a butter knife to see if it's properly cooked or not)

#pku #livingWithPKU #classicalPKU #phenylketonuria #lowProtein #vegan #food

poconnor, to random
@poconnor@pkutalk.com avatar

Easy PKU lunch ideas: Cheese Scones
Tasty, fluffy, protein-free Cheese scone recipe. Baking made eash with pictures!
For people on #LowProtein diets like #PKU, #Phenylketonuria.
https://pigpen.page/cheese-scones-and-tips/

poconnor, to random
@poconnor@pkutalk.com avatar

What is Large Neutral Amino Acid (LNAA) treatment?
this is an additional treatment for #PKU which is used in certain European nations. In my book, "Living with PKU," I discussed LNAA and you'll find an excerpt on my blog:
https://pigpen.page/what-is-lnaa/

#LivingWithPKU #NSPKU2023 #ESPKU2023 #LowProtein

MarkMaguire, to pizza

TGIF - pizza night for my kids including our youngest with PKU low protein diet. Margherita pizza, no protein: Mevalia low protein pizza base, Violife Mozzarella flavour topping, Tesco pizza sauce.:chefkiss:

poconnor, to random
@poconnor@pkutalk.com avatar

What is Large Neutral Amino Acid (LNAA) treatment?
this is an additional treatment for [https://pkutalk.com/tags/PKU] which is
used in certain European nations. In my book, "Living with PKU," I discussed
LNAA and you'll find an excerpt on my blog:
https://pigpen.page/what-is-lnaa/ [https://pigpen.page/what-is-lnaa/]

[https://pkutalk.com/tags/LivingWithPKU]
[https://pkutalk.com/tags/NSPKU2023]
[https://pkutalk.com/tags/ESPKU2023]
[https://pkutalk.com/tags/LowProtein]

poconnor, to random
@poconnor@pkutalk.com avatar

Easy PKU lunch ideas: Raisin Scones
Tasty, fluffy, protein-free raisin scone recipe. Baking made eash with pictures!
For people on #LowProtein diets like #PKU, #Phenylketonuria.
https://pigpen.page/pku-raisin-scones/

poconnor, to random
@poconnor@pkutalk.com avatar

Easy #PKU Lunch ideas!
2g protein frm the new @Genius Ciabatta, filled with cucumber, pickle, & protein-free cheese (@Violife)

Ciabatta found @Ocado

#LivingWithPKU #AdultPKU #LowProtein

poconnor, to random
@poconnor@pkutalk.com avatar

Needed a cake at the weekend, so grabbed a tried & trusted @LowProConnect Victoria Sponge cake recipe - https://www.nutricia.co.uk/patients-carers/recipes/victoria-sponge.html
I added cocoa, and swapped out the cream & jam for Chocolate fudge icing.

Delicious!

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