"I have sat through countless GP appointments where I have had to explain the basics of Post Exertional Malaise [PEM], the cardinal symptom of ME, before going on to discuss treatment."
I've had similar doctor visits.
It's frightening that so many doctors know so little about ME/CFS.
"We are THRILLED to share the rolling successes of our 'Teach ME Treat ME' campaign with you, as we report back on the amazing medical education events that have taken place so far – with many more to come in the upcoming months!"
Article has lots more details along with reports of other Millions Missing events! 😁
A review of data from 51 countries finds that adolescent girls and young women using hormonal contraception had lower odds of being anemic. https://pubmed.ncbi.nlm.nih.gov/37978956/
Survey finds that people want more information from their primary care provider about fertility; they report having fertility concerns dismissed by healthcare providers; and feel that healthcare providers lack sensitivity in discussing fertility related issues.
You can also print the document (8 pages) to bring to your next appointment. I've given it to several doctors - and so has my husband, who does not have ME/CFS!
Sharing information about the Mayo ME/CFS document (Diagnosis and Management of ME/CFS) - and the associated CME (Continuing Medical Education) - is a great way to immediately improve patient care for people with ME/CFS.
Remember, roughly half of Long Covid patients meet the ME/CFS diagnostic criteria.
Need help crafting an email to send to your doctor? Here's a template:
In the final stage of his kidney disease, Rick Slayman did humanity a favor by testing the next generation treatment for kidney failure. May he rest in peace and the research data gleaned from his transplant helps others #MedMastodon
🔗Pig kidney ‘xenotransplant’ patient dies two months later
No indication that Richard ‘Rick’ Slayman’s receipt of genetically modified kidney caused his death, says Massachusetts transplant team
Foreskin Morbidity in Uncircumcised Males
Sneppen and Thorup, Pediatrics 2016
"In our patient population, we found that 7.2% (95% CI 3.4–11.0) were diagnosed with autism spectrum disorder (ASD) as a concomitant disease (Table 3). A recent Danish study calculated the prevalence of ASD in Denmark to be 1.5% among boys."
Association found between ASD and childhood penile surgeries. This is reference 1, next toot has #2.
Two different research groups have now found a relationship between early childhood penile surgeries and autism spectrum disorder. The two different studies had different goals, different recruitment approaches, different study variables, and yet the relationship between ASD and circumcision remains quite striking!
For boys undegoing penile genital cutting before age five, the risk of ASD is even higher.
Is the #pharmaceutical industry behind a disinformation and #media campaign relating to national #pharmacare? This report, announced by The Council of Canadians, says yes.