donni, to random
@donni@mastodon.social avatar

I get knocked down, and I stay down for awhile. It’s comfortable down here

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@donni

I hear ya!

Reminds me of this image 😁

#PwME #Spoonie #Humor

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

BMJ e-letter:
"Why I’d rather have a well-researched and well-informed doctor"

Free:
https://www.bmj.com/content/376/bmj.n3102/rr-0

"the NHS simply does not offer any kind of useful care" for ME and [#LongCovid]

#MEcfs #CFS #PwME
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome @longcovid
#LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC #COVIDBrain

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@tomkindlon

Thanks for the link, Tom. We definitely need more doctor education!

Anyone reading this can share the Mayo ME/CFS CME (continuing medical education) with their doctor(s):

https://millionsmissing.meaction.net/treatme/

Half of Long Covid patients meet ME/CFS diagnosis.

The link above is for folks in the USA, but #MEAction also did outreach in May in some other countries:

https://www.meaction.net/2024/05/17/teachmetreatme-celebrating-an-impactful-campaign/

@mecfs @longcovid

#MEcfs #LongCovid #PwME #PwLC #TeachMETreatME

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

Read the latest (US) National Institute of Neurological Disorders and Stroke [NINDS] Director’s Message from Dr. Walter Koroshetz: Advancing Research on ME/CFS.

https://www.ninds.nih.gov/news-events/directors-messages/all-directors-messages/advancing-research-mecfs

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

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