lia_pas, to mecfs
@lia_pas@vis.social avatar

Catch the premiere of Opera Mariposa’s last online musical performance for #BAMonth2024 and #MEAwarenessMonth ! Join me NOW for a beautiful piano improvisation, and mark the close of an incredible May Awareness Month for #MECFS, #Fibromyalgia and other chronic neuro-immune diseases. https://www.youtube.com/watch?v=47ADrkevWNQ

halcionandon, to KindActions
@halcionandon@aus.social avatar

This article is about me:
https://t.co/f1vB5pXoK6

This isn’t even the half of it. They’re planning a 3 part series, energy allowing & also playing it by ear.

People helping is most important. More than money. I need an & safe place to live most. Please consider.🙏

There’s links in the article but a summary:

Crowdfund: https://www.buymeacoffee.com/halcionandon

Also:
People with Australian bank accounts can use https://www.beem.com.au to pay @halcionandon. Fee free & anonymous

Please & thanks for reading. Help not expected but appreciated💜


@disabilityjustice @mutualaid
@disabilityjustice @neisvoid
@mecfs
@chronicillness
@socialwork
@longcovid

halcionandon, to chronicillness
@halcionandon@disabled.social avatar

This is me:
https://t.co/f1vB5pXoK6

There are help links in the article but to summarise:

My crowdfund: https://www.buymeacoffee.com/halcionandon

Also:
People with Australian bank accounts can use https://www.beem.com.au to pay @halcionandon. Fee free & anonymous.

People helping me is most important. I need a safe place & an the most. Please consider.🙏

Please & thanks for reading. Help not expected but appreciated.💜


@mutualaid
@mecfs
@chronicillness

lia_pas, to mecfs
@lia_pas@vis.social avatar

I wrote a blog post on all the ways I'm participating in
Opera Mariposa's benefit this year for . There is art, music, and prizes to be won!

https://liapas.com/2024/05/10/opera-mariposa-benefit-2024/

lia_pas, to mecfs
@lia_pas@vis.social avatar

An exclusive mix of The Hum is now live on Opera Mariposa’s YouTube channel! This is part of their benefit and awareness campaign for . https://youtu.be/TwimUTiW4qE?si=jrH-3mbZPbek7Eb3

britt, to random
@britt@mstdn.games avatar

It’s #MEAwarenessDay

I don’t really know what to say, except… let us speak. Listen without judgement or comparisons. Let us tell our stories. Let us be sad. Let us be mad. Let us grieve who we were before this happened to our bodies.

And please, don’t kick #pwME to the curb because they are different now. Don’t distance yourself from us. We’re still ‘us’ … it’s just our bodies that have forsaken us.

#MEAwarenessMonth

IrishMECFSAssociation, (edited ) to mecfs

May is Myalgic Encephalomyelitis (ME) Awareness Month.

You can help by liking and/or retooting this video. This 2017 TED talk features @jenbrea.

https://youtu.be/Fb3yp4uJhq0

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #NeuroME @mecfs @cfs

Day #1

IrishMECFSAssociation,

13/
This is a short (78-second) video about postexertional malaise in ME/CFS.

It uses the battery analogy, but also highlights the effects of payback i.e. the unusual results of exertion in ME. There is no sound.

May is #MEAwarenessMonth.

You can help raise awareness and understanding by retweeting and/or liking this video
https://www.youtube.com/watch?v=THlRW_YGZmE

Day 13

@mecfs @cfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #CFSME #MEeps

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