Their representative polls found that "the further away from the GP, the less people are willing to share their #HealthData" and yet BEUC concludes that while data use by medical profl's should require #OptIn consent, for secondary use by #BigPharma and #BigTech an #OptOut option is enough. ❓❓❓
So good to see MEP #PetarVitanov pushing back and emphasising the risks of #discrimination and abuse in particular for #marginalised people when medical records are shared without consent as foreseen by the #EHDS.
The #EHDS's entire secondary use regime for #medical records is so shaky that the European doctors' association #CPME calls to completely exempt doctors from it. 🤐
Great push-back from @beuc's #MoniqueGoyens against the insurance lobby: the whole idea of #insurance is the #mutualisation of #risk, so abusing medical records for individual premiums and prices breaks the entire system.
Oh my, #InsuranceEurope lobbyist pulls out the "data will cure #HIV" argument. And because data collection allegedly leads to lower insurance prices, it's really about #inclusion not #discrimination. 🤦
It's mind-boggling how the @EU_Commission rep just says "don't worry, anonymised #medical records are not personal data" while ignoring a decade of #computer#science and de-identification #research.
Of course the #insurance lobbyist gratefully jumps on that falsehood, throwing all the #innovation and medical advancement journey BS that the insurance industry allegedly provides at us. #EHDS#ConsumerDebates
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