I just got PKU Positive's little book on Clean Eating With PKU - it's great for quick healthy low protein meal plans, at https://pkupositive.wordpress.com/ after seeing @soheb your recommendation. Is she on social any more? #PKU#Recipes
@soheb so true, it is where and when you are born that makes all the difference. In NY State when I was born there was no screening yet but when my children were born there was - and they both had PKU diagnosed.
So @Aybara19 told me all he ever sees is my posts, and I think part of the reason is that the app he uses doesn’t have an easier way to view other posts, but also he isn’t following anyone else.
🚨 THIS IS THE LAST WEEK TO GET "Living with PKU" ON DISCOUNT AND HAVE THAT MONEY GO TO CHARITY!! 🚨
An absolutely brilliant book about living with PKU/Phenylketonuria! If you are even a remotely curious person, BUY THE BOOK HERE: https://pigpen.page/books/
Written by our very own marvellous @poconnor - DON'T WAIT UNTIL THE WEEK IS OVER TO BUY THE BOOKS, FOLKS!!
Hi Everyone, I'm a mom of 2 grown up daughters who have PKU. I'm coming over from what used to be twitter... on Pauline O'Connor's recommendation of this great site.