@poconnor@pkutalk.com
@poconnor@pkutalk.com avatar

poconnor

@poconnor@pkutalk.com

Author & Advocate.

WI Speaker. Content editor.

Books
#TheRedHatStories
#LivingWithPKU
#LivingWithMildBrainInjury

#RareDisease #BrainInjury #PKU #ShortStories

https://pigpen.start.page

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poconnor, to random
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Which is your favourite?

I found the photo shoot from the release of my first book.

poconnor, to random
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I groomed the #FluffMuppet, it was an adventure

soheb, to random
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Me: I need to go to work tomorrow
🧠: you need to go to work tomorrow
Me: I need to wake up early
🧠: you need to wake up early
Me: so I need sleep now
🧠: so you need sleep now
Me: so I go to bed
🧠: so you go to bed
Me: and sleep
🧠: lmao wouldn’t it be cool to just keep you awake, just in case????

poconnor,
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@soheb I’ve spent the evening going from 0 to 15 in Diablo IV. Thinking this will be in my future…

poconnor,
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@soheb then the obvious solution is to roll a necromancer and get levelling!

poconnor, to random
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It’s all about Books! 🥳

➡️Join the #LivingWithPKU fundraising push for @NSPKU & support a patient charity🫂 Link in bio

➡️Sale @routledgebooks for #LivingWithMildBrainInjury
Buy 2 or more and get 2⃣5⃣% off. Includes the #BrainInjury series🙏

https://www.routledge.com/search?kw=brain+injury

poconnor, to random
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Whoop, there have been a few sales which means the NSPKU with new getting some funds.

Please spread the word to help boost sales and support throes amazing patient charity!

#LivingWithPKU #PKU #pkulife #Charity
Www.PigPen.page/books

poconnor,
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@soheb meanwhile, so pleased that mastodon has an edit button!

soheb, to gaming
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How's everyone's sunday today? 🤔

Me? I've made myself and my dad a cup of coffee, and I'm ready to get back on the Xbox Series X and play some more Inscryption, but first I need to order some more coffee as I'm running out...

#sunday #xbox #inscryption #games #gaming #lazysunday #coffee #chill

poconnor,
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@soheb I was busy down at the PigPen allotment. Just catching up on your Ah-mazing! posts about the book promo. You are exceptional at this marketing thing!
May I use them elsewhere please?

Allotment progress photos. Tomato, courgette, pumpkins, lettuce, fennel & celeriac in. Apple, raspberries, blackcurrants and potatoes going nicely. And hope to put the melon & sweet potatoes in soon

image/jpeg

poconnor,
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@soheb of course, I did not know Matodin had alt text. Thank for letting me know how to do it

poconnor, to random
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Hey @soheb , you are great at this marketing jazz - am taking notes ! 😆

poconnor, to random
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50 years ago, the National Society for PKU was set up to help patients and their families with an incredibly restrictive Inherited Metabolic condition.
They have supported countless people over the years.

I’m supporting them this summer by donating 50% of all profits from #LivingWithPKU book sold in to the NSPKU‘s #GoldenAnniversary campaign

If you’re even remotely interested in #PKU, please pick up this valuable resource & support an amazing charity and everything that they do. Thank you

video/mp4

soheb, (edited ) to random
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Our very own @poconnor has released her latest newsletter out today! You can read it here:

https://mailchi.mp/a0ea72f0e82a/pigpen-newsletter-pku-brain-injury-and-mental-health-9105380?e=c53e4b7d0f

But here is the major news:

🚨 Half of the profits of Living With PKU is going to the NSPKU between June and July!! 🚨

If you have even the slightest of curiosity about #PKU, please pick up the book here: https://books2read.com/u/3GWYnd?ref=pigpen.page

Boosts are incredibly welcome and encouraged!!

#boost #boostok #boostswelcome #pku #phenylketonuria #phenylcetonurie #lowprotein

poconnor,
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@soheb amazing! Thank you so much . I teally hope to raise some £££ for the NSPKU, they have helped so msny people.

#LivingWithPKU

poconnor,
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I just checked, we’ve already sold copies. Whoop, the campaign is underway!

soheb, to random
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Wake up
Make breakfast: low protein toast with two hash browns
Put salt on hash browns
Put pepper on hash browns
Accidentally inhale black pepper
Sneeze on self

Every. Single. Morning.

poconnor,
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@soheb do you toast or fry the hashbrowns?

soheb, (edited ) to random
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Look what came in the post! The NSPKU news and views magazine!! @poconnor

#phenylalanine #phenylcetonurie #phenylketonuria #pku #pkulife #nspku

poconnor,
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@soheb huzzah!!

poconnor,
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@soheb yay, that’s the one! Planning a social media blitz start on Thursday - 1st

Figured after everything the NSPKU have done then this was a small way to pay something back 💐💐

poconnor, to animals
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Morning adventure with the #FluffMuppet

#keeshonden #dogsOfMastodon

poconnor,
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@soheb we are lucky in that most things come off with a shake.
But yes, she did get a good brush - and needs more still!

But worth it for the smiles

poconnor, to random
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Hey @soheb, you often get the NSPKU News & Views before me. Could you please let me know when you receive the next one? I’m starting a promo campaign so see if you can sort my ad :)

soheb, to random
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Going to be seeing some old friends, and also planning on having some phe exchanges outside.

What are folks tips and tricks for managing phe for foods that you don’t know (e.g. restaurant food)? Mine is skipping either lunch exchanges or both lunch and dinner exchanges to ensure I stay in the green…

#phe #phenylketonuria #phenylcetonurie #pku #lowprotein #diet #health

poconnor,
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@soheb yeah, I do that. Often will end up with several side dishes as those are often better than a main

poconnor,
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@soheb if it is a picnic, can you tske a smoothie or similar?

poconnor,
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@soheb hoping for sweet potato chips for you

poconnor,
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@soheb haha, you do need some protein!

poconnor, to random
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soheb, to random
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Getting back into the swing of going back to the gym! My arms/chest is still sore from weight lifting so today it’s time on the elliptical

poconnor,
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@soheb nice one! I did a bit of bouldering last week and ached for days. Working up the courage to go back

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