“We conclude that long Covid is a real condition,” committee chair Paul Volberding, a professor emeritus of medicine at UCSF, said in a video conference Wednesday. “People suffering from it have to be listened to and have to be believed and deserve the best access possible to the management strategies.”
“The Social Security Administration has not yet said what it will do with the report’s conclusions. The agency is in the process of updating its long Covid guidance.”
“Hollywood Animal is a management sim about turning a bankrupt movie studio into a money printing machine, set in Hollywood’s golden age. [This game is] all about balancing a fickle audience and Tinseltown’s seedy underbelly. Maybe making some worthwhile art, too? Sorry, did I say ‘worthwhile art’? I meant to say “lots of money.””
“It would take another 92 years before the scientific consensus would make its way back to the germ theory of multiple sclerosis, and when it finally did, with the 2022 publication of a 20-year longitudinal study of thousands of Veterans Administration MS patients, it didn’t exactly break the internet.”
“RECOVER is really a disaster,” the researcher told the Prospect. “They’re wasting all this money on observational research and voodoo stuff like CBT [cognitive behavioral therapy] and sleep therapy … when if you’d given that funding instead to [specialists] we might have some understanding of why viruses are associated with these particular chronic problems by this point.”
“The most mind-blowing moment [..] came when they managed to actually record the sounds that she heard in her ears. [..] “The NHS definition is that [tinnitus is] a phantom sound that your brain is creating, that it isn’t something ‘real’, so you should try to ignore it.”
“By having De La Mata place her ear into an anechoic chamber, with an ultra-sensitive microphone perched in her ear canal, they were able to provide significant evidence to the contrary.
“After the first recording of it, it was ‘There’s no way, this isn’t possible.’” They tried again with her breath held, and again with her tensing her ears, and again with other members of staff, but each time it became apparent that yes, the noises De La Mata hears are seemingly something physical.”
“What really elevates it, though, is that this is a genuinely funny video game, one that truly captures that old Bullfrog sense of humour. The writing here is wonderful, and the voice acting incredible”
National Academies of Science report on Long Covid arrived before summer.
What I pulled from the report is the recovery trajectory for non-hospitalized unrecovered. At one year, about 65-50% of the people studied still had fatigue and/or shortness of breath, and a 40-30% sized group still had muscle pain, headache, and/or chest pain.
For those unlucky to get a big hit, it may be a multi year recovery of function.
@PeterBronez good question. The system in the US is so difficult to navigate, what I’ve read on social media is it takes a lawyer, lots of time, and the benefits are too small. It may be failing millions of people, if the clinical statistics can be connected with rates in the survey data. It’s possibly designed to fail, as that’s what it does. Everyone wants a single test, that doesn’t exist yet. I think SSA is trying to understand where the science is at, and how to inform the medical systems.
“The enthusiastic reception that small games have enjoyed in the first half of 2024 isn't something that will come and go. It's a full-blown age. This trend will continue, because the conditions that created it will continue”
“Notice [to consumers] is a fiction if it means having to sift through hundreds of thousands of pages of privacy policies. Consent cannot be meaningful when consumers don't have information to actually make real choices and they are forced to live their lives online as the digital economy becomes more and more entrenched in our everyday lives, including our lives at work.”