tomkindlon,
@tomkindlon@disabled.social avatar

🧵

"Failings in the care of patients with #VerySevereME" by Dr Nigel Speight

https://meglobalchronicle.wordpress.com/2024/03/12/failings-in-the-care-of-patients-with-very-severe-me-vsme/

A shocking new article by Dr Speight who helps many desperate young people with ME & their families, to try to arrange safe care & nutrition.

He gives case study information on historic & current patients at risk
in NHS hospitals in the UK.

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @severeme
#SevereME #SevereMECFS
#SevereCFS #VerySevereME

1/

drclareharris,
@drclareharris@newsie.social avatar

@tomkindlon @mecfs @severeme

It’s just so sad.

As a retired psychiatrist who had to accept punts from doctors who thought abdominal pain in a mentally challenged young man was “anxiety” but they hadn’t done liver function tests (eventual diagnosis, hepatitis) or a young man anxious about his sick pregnant wife and having trouble swallowing had “Pseudocyesis” or “Globus Hystericus” rather than botulism they actually both had.

All too often a psych diagnosis

drclareharris,
@drclareharris@newsie.social avatar

@tomkindlon @mecfs @severeme

is made in the place of a medical diagnosis because they just don’t know what’s going on.

I had hoped that #PASC would have brought to light the viral underpinnings of #ME and #CFS and #fibromyalgia. Things are heading in a good direction at first.

But now that effort seems to have gone by the wayside.

I hope I’m wrong but it’s discouraging.

tomkindlon,
@tomkindlon@disabled.social avatar

2/

He gives case study information on historic & current patients at risk in NHS hospitals in the UK.

Extracts:

«At the end of my talk one of our best nurses said “So what you are telling us is that everything we have been taught as nurses is wrong for this condition”»

«The court order was reversed and the girl was allowed home to make a good spontaneous recovery.»

@mecfs @severeme #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

tomkindlon,
@tomkindlon@disabled.social avatar

3/

Reminder to people in Ireland: Dr Speight's 5 free Irish ME/CFS talks in Cork/Dublin/Galway/Limerick/Sligo, May 2024 organised by @IrishMECFSAssociation . Plus he is seeing patients aged 20 or younger for free while he is in Ireland.

https://t.ly/pxN-k

@mecfs @severeme #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE

tomkindlon,
@tomkindlon@disabled.social avatar

4/
"For many doctors, being confronted with a case of very severe ME will be their first experience of such a case. This may lead to a form of denial, whereby the doctor has to find another explanation for the presentation". Dr Speight discusses recent cases.

#MEcfs #PwME #severeME #verysevereME
@IrishMECFSAssociation @mecfs @severeme

  • All
  • Subscribed
  • Moderated
  • Favorites
  • mecfs
  • Durango
  • magazineikmin
  • mdbf
  • thenastyranch
  • khanakhh
  • rosin
  • Youngstown
  • ethstaker
  • slotface
  • modclub
  • kavyap
  • DreamBathrooms
  • everett
  • ngwrru68w68
  • JUstTest
  • InstantRegret
  • tacticalgear
  • GTA5RPClips
  • cubers
  • normalnudes
  • osvaldo12
  • tester
  • anitta
  • cisconetworking
  • megavids
  • Leos
  • provamag3
  • lostlight
  • All magazines