pcublogue, 4 days ago to random French

Bleuets 🫐
Bananes 🍌
Avocats 🥑
Lait d’amande
Sirop d’érable
20g de protéines de formule
Une bonne façon de commencer la journée
😋 💪🏻👌🏻
*
Blueberries 🫐
Bananas 🍌
Avocado 🥑
Almond milk
Maple syrup
20g of formula protein
A good way to start the day
😋 💪🏻👌🏻

#phenylcetonurie #pku #pkustrong #pkuawareness #phenylketonuria #lowprotein #globalhealth #santéglobale

pcublogue, 10 days ago to random French

Beau début de journée. ☀️
📌 6000 pas jusqu’à maintenant
📌 Musculation
📌 Jeûne de 14 heures
📌 40g de protéines de formules pour briser le jeûne

Tout ça avant 11:00!

Motivation, motivation 😛💪🏻

#phenylcetonurie #pku #pkustrong #pkuawareness #phenylketonuria #lowprotein

poconnor, 1 month ago to writing

May newsletter from PigPen 🐷🖋️ #writing, #PKU, & #BrainInjury

🚨 #Prescription costs in England & Wales go up!

📣 NSPKU conference & #PKUAwareness month

🧑‍🔬 Help with #TBI research

🥳 🥳 #TheRedHatStories funded! Last chance to join us in the #Kickstarter which closes on #StarWarsDay #MayTheFourthBeWithYou

https://buff.ly/3Wp8jJM

pcublogue, 1 month ago to random French

Sharing my thoughts about willpower and #phenylketonuria after watching a very interesting podcast about nutrition and health.

#PKU #PKUawareness

http://phenylcetonurie.ca/2024/04/15/dont-rely-on-willpower/

pcublogue, 2 months ago to random

Dinner this evening: Vegetables overload and sweet potatoes 🍠

#phenylcetonurie #pku #pkustrong #pkuawareness #phenylketonuria #lowprotein

pcublogue, 3 months ago to random French

En ce 29 février 2024, on célèbre la #Journéedesmaladiesrares. 😁
Comme j'ai une maladie rare appelée phénylcétonurie (PCU, PKU en anglais), je ne peux manger que 10g de protéines naturelles au maximum (moins, c'est encore mieux) car mon corps ne peut traiter un acide aminé spécifique, la phénylalanine.

#MaladiesRares #AfficheTonZèbre #RareDiseaseDay #Phenylcetonurie #Phenylketonuria #PKU #PKUawareness

pcublogue, 3 months ago to random French

Les meilleurs bleuets du monde pour dessert. 🫐

#phenylcetonurie #pku #pkustrong #pkuawareness #phenylketonuria #lowprotein #antioxydants #LacStJean #santéglobale #globalhealth

pcublogue, 3 months ago to random French

Did you know that February is the Rare diseases awareness month?
Saviez-vous que le mois de février est le mois de la sensibilisation aux maladies rares?

#phenylketonuria #pku #phénylcétonurie #pkuawareness #rarediseases #maladiesrares #affichetonzèbre #showyourzebra

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pcublogue, 4 months ago to random

Sad news for the #PKU community. This was the treatment that interested me the most.

#pkenylketonuria #phenylcetonurie #pkuawareness

https://investor.synlogictx.com/news-releases/news-release-details/synlogic-announces-decision-discontinue-synpheny-3-study-and

pcublogue, 4 months ago to random

I’m totally in phase with that. Of course, when it comes to #PKU, we need to add #phenylalanine management and amino acids formulas intake.☝️
#phenylketonuria #phenylcetonurie #pkustrong #pkuawareness

pcublogue, 4 months ago to random French

Est-ce que la volonté est comme un muscle qu’on peut entraîner? J’ai besoin d’y croire! 😝

Il n’y a rien qui travaille ma volonté comme faire le petit déjeuner de ma fille EN PLUS d’être en train de jeûner. 💪🏻😅

#phenylcetonurie #pku #pkustrong #pkuawareness #phenylketonuria #lowprotein

pcublogue, 4 months ago to random

#CetoPCU, jour 1 (repas 2 de 2).

📌 Riz fri aux légumes (konjac)
📌 Salade verte avec huile d’olive, curcuma et câpres

1g de protéines (méthode simplifiée) 🙌🏼
8g de glucides net 😄

#ketopku #phenylcetonurie #pku #pkustrong #pkuawareness #phenylketonuria #lowprotein

pcublogue, 4 months ago to random

#CetoPCU jour 1, mon déjeuner (repas 1 de 2).

📌 Sandwich BLT (le « bacon » est de la noix de coco fumée)
📌 Frites de céleri rave
📌 Ketchup sans sucre céto

Moins de 4g de protéines (méthode simplifiée)
11g de glucides net
Excellent 😋

#ketoPKU #phenylcetonurie #pku #pkustrong #pkuawareness #phenylketonuria #lowprotein

poconnor, 11 months ago to random

#Sapropterin blog series - with correct link!

Sapropterin trial, part 1: genetics & patience.

https://pigpen.page/sapropterin-trial-part-1/

#LivingWithPKU #AdultPKU #PKU #Kuvan #pkuawareness #PKUFitness #pkulife #pkuproblems #pkustrong

soheb, 1 year ago to random

Decided to give ChatGPT a go and ask it some PKU related questions like can it give me some recipes for folks with PKU.

One of the responses was... uh... very very wrong!!

The other was vegetable stir fry, which had it not been for the contradictory PKU friendly stir fry sauce, then it would've been quite great!

(Soy Sauce is a sauce made of soy, which is high in protein, which defeats the low protein diet. ✨ The more you know ✨)

#pku #phenyketonuria #pkustrong #phenylcetonurie #pkuawareness

pcublogue, 1 year ago to random French

May is PKU awareness month! Share a video of you doing 5 push-ups with the hashtags #pushups4pku and #nutriciaconnect and Nutricia will give $10 to PKU News, the creators of “How much Phe”.
#pku #phenylketonuria #pkustrong #phenylcetonurie #pkuawareness #pkuawarenessmonth

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