soheb, 1 year ago to random

Me as a child whenever I had to drink Maximaid/Maxamum in public

#pku #phenylketonuria #lowprotein #metabolicdiet #metabolic

soheb, 1 year ago to random

My #lowprotein breakfast, which includes a bit of a failed experiment with the Fate Flour (the bread was OK, but not as good as the Loprofin flour bread)

soheb, 1 year ago to random

Just done my blood spots for my PKU! The first circle is great, but I eventually loose steam by the end 😂

#pku #phenylketonuria #phenylcetonurie #bloodspots #bloodspot #blood #health #nhs #lowprotein #diet

soheb, 1 year ago to random

Going to be seeing some old friends, and also planning on having some phe exchanges outside.

What are folks tips and tricks for managing phe for foods that you don’t know (e.g. restaurant food)? Mine is skipping either lunch exchanges or both lunch and dinner exchanges to ensure I stay in the green…

#phe #phenylketonuria #phenylcetonurie #pku #lowprotein #diet #health

soheb, 1 year ago to random

My last bloodspot result came in, and it was 394umol/L!!

I’m so happy and proud of myself for managing to keep my levels down for a whole entire YEAR!! Past me wouldn’t believe such a thing, and yet here I am!! 😁🎉🥳🎊

#bloodspot #pku #phenylketonuria #phenylcetonurie #lowprotein #restricteddiet #health #phenylalanine

soheb, 1 year ago to random

@poconnor has written a blog post on how to make a Protein-free Carrot cake, for those with #PKU or #lowProtein diet. Check it out here:

https://pigpen.page/protein-free-carrot-cake/

#pcu #phenylketonuria #phenylcetonurie