ezchili, 6 months ago

People can have Long Covid and POTS, MCAS, diabetes, MS, etc. They can also have Long Covid and ME/CFS.

Not identifying subgroups within LC dilutes research studies.

Not identifying and counting ME/CFS perpetuates stigma. It hurts science and patients.

#MECFS #LongCovid #pwME #LCME

ezchili, 6 months ago

ME triggered by anything after 2020 will probably fulfil LC criteria because it's difficult to rule out Covid.

If we stop diagnosing ME in people who might have had Covid-19, then ME will cease to exist officially.

If we deny ME/CFS, we lose a crucial tool with connection to history and previous science.

#MECFS #LCME #HistMed @longcovid @mecfs @historyofmedicine

ezchili, 6 months ago

We shouldn't deny those who fulfil ME/CFS criteria a diagnosis of ME/CFS.

Denying that ME/CFS can be triggered by SARS-CoV-2 is counterproductive for the patient, for research, for health care knowledge, and for society.

#MECFS #pwME #LCME #LongCovid #svmed @longcovid @mecfs

lilith_grace, 6 months ago

@longcovid @mecfs @ezchili I have not seen anyone in the ME/CFS community denying membership to those contracting ME/CFS after Covid. I have seen both patients and researchers in Long Covid denying any connection with ME/CFS. We are stronger together.