Some pretty great talks at #UniteToFight2024 Day 1, but literally ALL the people giving talks are only active on #Twix and most of the discussion happens there?!
I could not go back to that platform for a million moniz, but we do miss out on a lot here.
Switching to Mastodon has been a very isolating experience for me. Almost the entire #LongCOVID community is still active on that horrible fascist website. I do find most information here eventually, but second hand.
Whenever i hear about severe cases of ME/CFS or Long COVID, i realize that i probably have a medium or even mild case. But then again, even such a medium or mild case can be so very debilitating. And all this with the sword of damocles hanging over it, that symtoms could always get worse.
No one wants this horrendous illness. Stop the gaslighting!
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