Hi, I have ME/CFS and just trying to make sense of this statement. What is the infection responsible for 10-12% of cases, and how is this different to the upto 80% of cases?
I'll try, but please forgive me if it doesn't make sense. I'm not doing so hot myself!
The image is a screenshot from the meaction.net website. On that page there's a link for each of the red (highlighted) items.
That item ("10-12% of individuals") links to 2006 research paper - "Post-infective and chronic fatigue syndromes precipitated by viral and non-viral pathogens: prospective cohort study." Three viruses are mentioned.
@franba Wait, I think I figured out what you are asking. The 10-12 % means that one study found that 10-12% of people who got certain viruses got ME/CFS. (Epstein-Barr virus, Coxiella burnetii virus, or Ross River virus)
That percentage is not about the roughly 20% of ME/CFS patients who appear to have gotten the illness without being triggered by an infection.
@ahimsa_pdx@mecfs@longcovid I kind of don’t want to say, cos it’s not fun, but if you’ve had ME/long-COVID and are feeling much better, please think of it as remission for the first few years. So you’ll take care of your spoons. Because I’ve had many good and rough years, or weeks or days, since my ME began in 1992.
@ExponentialGPs thank you. I'm only in my first year (longcovid) and just starting to feel a bit better. Still thinking I'll get 💯 better. It's jard to deal with the insecurity, not knowing how my health will develop @ahimsa_pdx@mecfs@longcovid
@ExponentialGPs@ahimsa_pdx@mecfs@longcovid Completely agree, feeling better (even "normal") after suffering debilitating L.C., does not indicate being free of that infection. Rather the symptoms are suppressed and taking care of your health and managing energy need to be constant priorities if that state is to continue.
@ahimsa_pdx@mecfs@longcovid 🤯 And I 'recovered' from COVID in Feb2021, I tried to build my cardio back up with exercise. I'd hit the wall in minutes, and it got worse. So I kept trying again every few months. It was only about a month ago that I was finally able to build stamina with high intensity cardio. "COVID is just a cold" my ass!
@rusozoll I'm happy you're in the recovered group! 😁
Others with post COVID symptoms (and many ME/CFS patients over the past few decades) have either had only temporary recoveries, with an eventual relapse, or no recovery at all. It sucks!
Post-viral illness can be quite disabling. As Dr. Ziyad Al-Aly says, the best way to prevent Long Covid is to avoid COVID!
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