It's weird to see so many people openly talk about struggling with #POTS (postural orthostatic tachycardia syndrome) because I've been dealing with it since I was a kid and had gotten used to having to explain it to everyone including many doctors, nurses, and paramedics (and thereafter having to tolerate most laypeople on top of medical personnel dismissing me as being over anxious hypochondriac). POTS being a "trending topic" and an actual hashtag because of long covid is a real reality shift for me.
@gersande@stufromoz Having had it for 30+ years (#MECFS) yep. Suddenly everyone is like oh yeah, #POTS is sos weird, where before before I used to have to say “It s a weird blood pressure trick” as shorthand.
I've had some form of orthostatic intolerance (neurally mediated hypotension came first, POTS came later) since 1990. And yes, some doctors have asked me, "What's that?" when I share my diagnosis!
On the other hand, doctors often think they know what Chronic Fatigue Syndrome is ("Oh, that means tired all the time, right?") 🙄
This Mayo Clinic document explains what ME/CFS actually is:
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